HHT is Rare As One!

Cure HHT has been selected as 1 of only 30 organizations out of 287 that submitted letters of interest, to participate in the Chan Zuckerberg Initiative’s (CZI) Rare As One Network, which will provide funding, tools, expansion support, and training to create a larger, more integrated HHT community!

Founded by Dr. Priscilla Chan and Mark Zuckerberg in 2015, the Chan Zuckerberg Initiative (CZI) is a new kind of philanthropy that’s leveraging technology to help solve some of the world’s toughest challenges — from eradicating disease, to improving education, to reforming the criminal justice system.

Cure HHT has worked tirelessly to reach this point, and our work has only just begun! We are excited to step into the next phase as we grow as an organization, and announce the launch of the Cure HHT Research Network, an HHT patient-led research network that encourages the sharing of ideas among patients, scientists, and physicians. We cannot do this without you! Click below to see our mission.

Cure HHT Research Network

Please be patient as we work together to navigate this exciting new chapter for the HHT community. More information will be provided in the upcoming months.