What the HHT?
A blog for the HHT community
Advocacy
Rare as One: Cure HHT receives CZI grant extension
We are thrilled to announce that our grant in the Chan Zuckerberg Initiative – Rare As One will be extended for another year! It’s hard to believe it has been 2 years since we were first selected as one of only thirty rare disease organizations to be a part of CZI – Rare as One.…
Read MoreA WIN on Capitol Hill for HHT!
You may recall that back in November 2020, Cure HHT reached out for help to urge the Senate to correct an oversight related to the Department of Defense’s (DoD) Peer Reviewed Medical Research Program (PRMRP) and add “vascular malformations” back among the conditions eligible for study – a designation that has advanced HHT research since 2015. Our…
Read MoreACT NOW! HHT Federal Funding in Jeopardy!
Over the past few years, our HHT researchers have received significant funding for “Vascular Malformations,” a serious manifestation of HHT, through the Department of Defense’s (DoD) Peer Reviewed Medical Research Program (PRMRP). We recently learned that VM’s were inadvertently left OUT of the PRMRP for 2021. Your help is urgently needed in getting VM’s back…
Read MoreCure HHT – 2019 Research, Medical Access and Awareness Initiatives Brochure
An overview of Cure HHT’s work, made possible by your support, in advancing diagnosis, treatment and research of HHT.
Read MoreHHT Scientific Advancement Through Federal Grants
Learn more about the progress made by Feinstein Institute for Medical Research, federal grant recipients for HHT scientific research. The Department of Defense grant awarded to the Feinstein Institute was advocated for and leveraged by Cure HHT. Cure HHT community support and donations made this possible!
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