What the HHT?
A blog for the HHT community
Posts by Riley Blevins
Volunteers Needed! Join Cure HHT on Capitol Hill
We are calling upon volunteers to Join us in Washington, DC, for HHT Hill Day and be the voice that drives change! Your presence can help make a powerful impact for the HHT community! Our organization exemplifies the Little Engine That Could, and a large part of that success is derived from the community of…
Read MoreCure HHT’s 2024 Impact Report
2024: A Year of Significant Transformation and Progress Every year is a different chapter in our story – each bringing us closer to our ultimate goal.. But 2024 was defined by new especially significant and meaningful results in moving science and research forward. This year, thanks to the efforts of our new Therapeutic Development team,…
Read MoreYour donations do more than you may realize
Hi! For those who may not know me, I’m Cassi Friday and I’m the Director of Research here at Cure HHT. That’s not the only hat I wear — My husband, Anthony has HHT, and I’m a mom of three little kiddos, two who also have HHT. It goes without saying, I’m deeply passionate about…
Read MoreThere Has Never Been More Reason For Hope: Consider Accelerating Progress With A Gift This December
A letter from Cure HHT Executive Director Marianne Clancy. Support Cure HHT’s mission with a gift this December. “It’s just a nosebleed.” It’s a misconception I still hear far too often. And I realize those receiving this letter need no explanation that HHT is so much more. As patients, caregivers, and friends of…
Read MorePress Release: Diagonal Therapeutics to Present Data at ASH 2024 Demonstrating the Economic and Clinical Burden of HHT
Diagonal Therapeutics — who has raised $128 million in Series A funding to support their sole project, a curative HHT therapy — today issued the below press release outlining new research demonstrating the significant healthcare cost impact of HHT. This data will be significantly important in advocating for funding for HHT, as well as attracting…
Read More