HHT: There’s an App for That

Presenter

Dr. Jeffrey Terrell received his medical degree from Harvard Medical School and received his training at Massachusetts Eye & Ear Infirmary. He is currently a Professor in the Department of Otolaryngology - Head and Neck Surgery at the University of Michigan, where he has served on the faculty for 23 years. Dr. Terrell is board certified in Otolaryngology and Medical Informatics and is a full-time Rhinologist who has been treating HHT patients his entire career.  We are grateful for Dr. Terrell’s insight into the needs of HHT patients and his desire to meet those needs through the development of an HHT App.

Webinar

Join Dr. Jeffrey Terrell to discuss the exclusive HHT app being developed by his Michigan team. In the near future patients can track medical treatments, test results, and nosebleed frequency as well as get personalized notifications and reminders to help them manage their HHT.  The app will also provide access to  Cure HHT educational information on their mobile device.

 


Webinar Highlights

  • Why a health App is important for patients with a chronic disease
  • Design framework for HHT App
  • Proposed features of the HHT App
  • Apple's "CareKit" components
  • HHT App Development Survey - We need your feedback on the functionality of this tool

ACT NOW

  • SHARE this information and webinar link with your family members affected by HHT

Cure HHT

Cure HHT is the cornerstone of the HHT community, advancing one common hope - to give those affected by HHT a chance for a normal life. Patient and physician education is the key to increasing HHT awareness and preventing unnecessary complications of this disease. This webinar series is just one of many ways we accomplish this mission.

The development of an HHT App is for the benefit of the HHT patient and their physician. It is through the generosity of donors in our community that we can make an HHT App possible for you and your family.  Please consider investing in the development of this tool. You can make a donation to this project at (mention “HHT App” in the comment section). We are grateful for any contribution.

 

HHT Maryland Golf Open

Dust off those clubs and get ready for a good time!

Cure HHT is planning its first hometown event and we want you to be part of the fun.

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May 12, 2017

Greystone Golf Course, White Hall, MD

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Click here to get 15% off for EARLY BIRD foursome registration until March 17th!

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Registration Includes...

Boxed Lunch       Open Bar

Raffles       18 Holes       $25,000 Hole in One 

Massages    BBQ Dinner   Award Ceremony   Auction

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*All proceeds go toward critical Cure HHT programs to support education and research programs for the treatment of Hereditary Hemorrhagic Telangiectasia.*

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To become a sponsor or donate an auction item, contact [email protected].