Useful Links to Outside Organizations
Links to outside medical and government organizations that provide information useful for HHT providers.
Related Resources
Cure HHT Canada
Organization – 2024Cure HHT Canada is a registered, tax-deductible charitable organization in Canada. The establishment of Cure HHT Canada marks a concentrated effort to expand and increase support of our community in Canada. Supporting Cure HHT Canada will facilitate…
MoreAbstracts – 14th HHT International Scientific Conference (2022)
Scientific Literature – 2023Angiogenesis. This article is open access and free for a certain period of time; otherwise, it is available for purchase directly from the publisher. Click to view resource.
MoreExecutive Summary – 14th HHT International Scientific Conference (2022)
Scientific Literature – 2023Angiogenesis. This article is open access and free for a certain period of time; otherwise it is available for purchase directly from the publisher. Click to view resource.
MoreAngel Flight NE
Organization, Patient Tool – 2023Angel Flight NE is a non-profit organization providing FREE medical air transportation for individuals with limited financial resources, including those suffering from rare diseases, to obtain life-saving medical treatment. Angel Flight NE’s primary…
MoreNo-Cost Genetic Testing for HHT and Other Rare Diseases: Rare Genomes Project
Organization, Patient Tool, Provider Tool – 2022The Rare Genomes Project is a patient-driven research project through the Broad Institute that performs full genome sequencing on families with suspected singe gene disorders who do not have a genetic diagnosis. The goal of their project is two-fold:…
MoreMeta | Science Discovery Platform
Organization, Scientific Literature – 2021Meta is a free research discovery tool from the Chan Zuckerberg Initiative, providing a faster way to understand and explore science through personalized feeds. Meta puts biomedical research in context so you can advance your work or take it in new d…
MoreMedlinePlus – US National Library of Medicine National, NIH
Organization, Scientific Literature – 2020MedlinePlus – U.S. National Library of Medicine: an online health information resource for patients and their families and friends.
MorePubMed – US National Library of Medicine National, NIH
Organization, Scientific Literature – 2020PubMed – NIH National Library of Medicine: National Center for Biotechnology Information and comprising more than 30 million citations for biomedical literature from Medline, including full-text content.
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