Lungs
Resources addressing HHT-related issues that affect the lungs including pulmonary AVMs, pulmonary hypertension and brain abscess caused by lung involvement. This section will include screening recommendations and treatment options.
Related Resources
The Science Behind the 2019 Scientific Conference (recorded)
Webinar – 2020Philippe Marambaud, PhD and Andy White, MD discuss important advances in HHT research which were presented at the 2019 HHT International Scientific Conference in Puerto Rico. Learn about advancements in drug therapies for bleeding, screening and trea…
MoreAbstracts – 13th HHT International Scientific Conference (2019)
Scientific Literature – 2019Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
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HHT Lung AVMs – A Tangled Web (recorded)
Webinar – 2019Dr. David Riggans, Interventional Radiologist from the Augusta Vascular Center at the Augusta University HHT Center presents his talk, “HHT Lung AVMs – A Tangled Web” from the Florida HHT Patient Conference. Dr. Riggans focuses on the importance of d…
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HHT Scientific Conference Summaries (recorded)
Webinar – 2018Drs. Hughes, Faughnan and Andrejecsk provide a first hand synopsis of the HHT science presented in Dubrovnik, Croatia where over 200 voices were heard from 23 countries. They reviewed the 12th HHT International Conference Executive Summary of…
MorePulmonary Arteriovenous Malformations (PAVMs) and Hereditary Hemorrhagic Telangiectasia (HHT)
Article – 2018Dr. Marie Faughnan, Cure HHT Scientific Research Director and Director of the HHT Center of Excellence at St. Michael’s Hospital / University of Toronto, provides a detailed overview of everything a medical professional needs to know about HHT and PA…
MoreAbstracts – 12th HHT International Scientific Conference (2017)
Scientific Literature – 2017Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
MoreExecutive Summary – 12th HHT International Scientific Conference (2017)
Scientific Literature – 2017Angiogenesis. Authors: Jillian W. Andrejecsk, Anna E. Hosman, Luisa M. Botella, Claire L. Shovlin, Helen M. Arthur, Sophie Dupuis-Girod, Elisabetta Buscarini, Christopher C. W. Hughes, Franck Lebrin, Christine L. Mummery, Marco C. Post, and Johannes…
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Hereditary Haemorrhagic Telangiectasia: Novel cardiopulmonary insights
Scientific Literature – 2017Author: Veronique M.M. Vorselaars. This article is available for public use and does not require purchase. Click to view the full article.
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PH and HHT Physician Brochure
Brochure – 2017PH can develop in HHT as a consequence of a high cardiac-output (HO) state. As a physician it is important that you understand the relationship between these two diseases. The Pulmonary Hypertension Association developed a brochure for physicians tha…
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Screening for Pulmonary AVMs
Article – 2017This handout provides HHT patients and physicians a step-by-step guide to the pulmonary (lung) arteriovenous malformation (PAVM) screening process using Contrast Echocardiography (CE).
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Pulmonary Hypertension and HHT (recorded)
Webinar – 2016Dr. Murali Chakinala, Co-Director of the Washington University HHT Center of Excellence, connects the dots between HHT and Pulmonary Hypertension. He discusses how HHT can cause PH, how the combinations of these diseases affect a patient and what tre…
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HHT & Stroke
Fact Sheet – 2016Strokes are very common in the general population and can be prevented in HHT. Strokes don’t just affect the elderly with HHT, they can affect children and young adults as well. Learn what causes a stroke and how to lower your risk.
MoreExecutive Summary – 11th HHT International Scientific Conference (2015)
Scientific Literature – 2015Angiogenesis. Authors: Helen Arthur, Urban Geisthoff, James R. Gossage, Christopher C. W. Hughes, Pascal Lacombe, Mary E. Meek, Paul Oh, Beth L Roman, Scott O. Trerotola, Sebastiaan Velthuis, and Whitney Wooderchak-Donahue. This article can be purcha…
MoreAbstracts – 11th HHT International Scientific Conference (2015)
Scientific Literature – 2015Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
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Impact of Pulmonary Arterivenous Malformations on Respiratory-Related Quality of Life in Patients with HHT
Scientific Literature – 2014PLOS One. Authors: Sandra Blivet, Daniel Cobarzan, Alain Beauchet, Mostafa El Hajjam, Pascal Lacombe, and Thierry Chinet. This article is available for public use and does not require purchase. Click to view the full article.
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