Clinicians First Time Seeing a Patient with HHT
Resources to guide physicians initiating screening and treatment in patients. Included are handouts and factsheets to provide to patients and families.
Related Resources
HHT Facts at a Glance
Fact Sheet – 2016The most critical HHT information highlighted on a single sheet. HHT Quick Facts provides you and your physician critical information about organs typically involved, symptoms of the disease, need for prophylactic antibiotics and use of IV filters.
MoreExecutive Summary – 11th HHT International Scientific Conference (2015)
Scientific Literature – 2015Angiogenesis. Authors: Helen Arthur, Urban Geisthoff, James R. Gossage, Christopher C. W. Hughes, Pascal Lacombe, Mary E. Meek, Paul Oh, Beth L Roman, Scott O. Trerotola, Sebastiaan Velthuis, and Whitney Wooderchak-Donahue. This article can be purcha…
MoreAbstracts – 11th HHT International Scientific Conference (2015)
Scientific Literature – 2015Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
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Optimal Management of HHT
Scientific Literature – 2014Journal of Blood Medicine. Authors: Neetika Garg, Monica Khunger, Arjun Gupta, and Nilay Kumar. This article is available for public use and does not require purchase. Click to view the full article.
MoreOptimal Management of HHT
Scientific Literature – 2014HHT remains frequently underdiagnosed and many families do not receive the appropriate screening and treatments. This article provides an overview of the clinical features of HHT, discusses the clinical and genetic diagnostic strategies, and presents…
MoreA Long Diagnostic Delay in Patients with HHT
Scientific Literature – 2012Orphanet Journal of Rare Diseases. Authors: Paola Pierucci, Gennaro M. Lenato, Patrizia Suppressa, Patrizia Lastella, Vincenzo Triggiani, Raffaella Valerio, Mario Comelli, Daniela Salvante, Alessandro Stella, Nicoletta Resta, Giancarlo Logroscino, Fr…
MoreDetecting HHT: Dental Hygienists can improve health outcomes by recognizing the first symptoms of this genetic disorder
Scientific Literature – 2010Dimensions of Dental Hygiene. Author: Sherri M. Lukes, RDH, MS, FAADH. This article is available for public use and does not require purchase. Click to view the full article.
MoreGenetics: HHT Overview
Scientific Literature – 2000Hereditary hemorrhagic telangiectasia (HHT) is characterized by the presence of multiple arteriovenous malformations (AVMs) that lack intervening capillaries and result in direct connections between arteries and veins. The most common clinical manife…
MoreGenetics: HHT Overview
Scientific Literature – 2000GeneReviews. Authors: Jamie McDonald, MS, CGC and Reed E Pyeritz, MD, PhD, FACMG. This article is available for public use and does not require purchase. Click to view the full article.
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Ask the Nurse: A Conversation on Pediatric HHT
Upcoming Webinar: Ask the Nurse: A Conversation on Pediatric HHT Fri., April 10Â |Â 12:00-1:00 p.m. ET When it comes to HHT, early recognition can make all the difference. Yet too many children…
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