Physician Fact Sheet

A compact fact sheet that can be hung on your refrigerator or carried with you to a new physician appointment, and shared in the event of an unexpected trip to the emergency room where health care providers may be unfamiliar with HHT. This fact sheet…

Rare Coagulation Disorders Resource Room – HHT

Rare Bleeding Disorders – HHT Overview.

Living with HHT (recorded)

Carrie Fiasco, Licensed Social Worker with the Cincinnati HHT Center of Excellence, explores the effects of HHT on your mental health and family relationships. In addition, learn coping skills that can help you live better with HHT, get tips on how t…

Genetic Testing and HHT

HHT Overview and Screening Guidelines (recorded)

Dr. Mollie Meek, Director at the University of Arkansas Medical Sciences HHT Center of Excellence, provides an introduction to the basic clinical features of HHT for adults and children, including the Curacao diagnostic criteria, general screening pr…

Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia

By Sara Palmer, PhD In this recently published book, psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how…

Diagnosis and Procedure Codes for HHT

Diagnosis and procedure codes are important for insurance processing, but they also help determine a more accurate prevalence of the disease. Make sure your medical records are accurate (CPT, ICD-9 & ICD-10).

My Family Has HHT Pamphlet

Looking for a simple explanation of HHT to share with your children and those who care for them everyday? This pamphlet is to assist children who may be uncertain or anxious about the symptoms of HHT experienced by themselves and/or their parents. Th…

Abstracts – 12th HHT International Scientific Conference (2017)

Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.

Executive Summary – 12th HHT International Scientific Conference (2017)

Angiogenesis. Authors: Jillian W. Andrejecsk, Anna E. Hosman, Luisa M. Botella, Claire L. Shovlin, Helen M. Arthur, Sophie Dupuis-Girod, Elisabetta Buscarini, Christopher C. W. Hughes, Franck Lebrin, Christine L. Mummery, Marco C. Post, and Johannes…

Learn More About HHT Brochure

Everything you need to know about HHT all in one place. You can gain a comprehensive understanding of the disease from diagnosis, screening, genetic testing and treatment of the disease. Special attention is given to anemic patients, pregnant women a…

Advice For People Newly Diagnosed With HHT

You’ve just been diagnosed with HHT, now what? This fact sheet will help guide you through your recent diagnosis.

Living with HHT

Living with HHT can be stressful at times, and most people can manage it. HHT does not have to define your life. Follow these six simple steps and start living life with HHT.

HHT & Depression

The stress of living with a genetic disease can lead to depression. Learn how to recognize the signs and symptoms.

Diagnosis and Misdiagnosis of HHT

HHT signs and symptoms are not recognized and often mistaken for other conditions. Misdiagnosis and delay in diagnosis pose the greatest risk to a person with HHT. Knowing the common misdiagnoses can lead to faster identification of HHT, life-saving…