Brain
Resources addressing HHT-related issues that affect the brain including cerebral AVMs, hemorrhage stroke, ischemic stroke, brain abscess, migraines and seizures. This section will include screening recommendations and treatment options.
Related Resources
International HHT Guidelines – Overview (Recorded)
Webinar – 2021Join Dr. Marie Faughnan, Director, Toronto HHT Centre of Excellence as she provides an overview of the newly updated International HHT Guidelines and how they are used to set the standard of care globally for the diagnosis and treatment of HHT. Dr. F…
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WEBINAR: Nociones básicas y generales sobre HHT (en español) (Recorded)
Español, Webinar – 2021Cure HHT se enorgullece de presentar el primer seminario web en ESPAÑOL. El Dr. Marcelo Serra, especialista en Medicina Interna y Director de la Unidad de HHT del Hospital Italiano de Buenos Aires, brinda una visión general de HHT que es comprensible…
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Screening for pulmonary and brain vascular malformations is the North American standard of care for patients with hereditary hemorrhagic telangiectasia (HHT): A survey of HHT Centers of Excellence
Scientific Literature – 2020Vascular Medicine. Authors: Alexandra Kilian, Marianne S. Clancy, Scott Olitsky, James R. Gossage and Marie E. Faughnan. This article is available for public use and does not require purchase. Click to view the full article.
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Patient Symptom & Care Checklists
Provider Tool – 2020Download and distribute “My HHT Care Checklists” to patients to complete and return to you, including: HHT Care, HHT Diagnosis, Anemia, Brain VMs, Pediatric, Teen Years, Nosebleed, GI Bleeding, Liver VMs, Pregnancy & Delivery, and Pulmonary AVMs….
MoreCerebrovascular Malformations in a Pediatric Hereditary Hemorrhagic Telangiectasia Cohort
Scientific Literature – 2020Pediatric Neurology. Authors: Lauren A. Beslow, MD, MSCE; Jake Breimann, BA, Daniel J. Licht, MD; Jake Waldman; Samantha Fallacaro; Reed E. Pyeritz, MD, PhD; Elizabeth Goldmuntz, MD; and Arastoo Vossough, MD, PhD. This article can be purchased direct…
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The Science Behind the 2019 Scientific Conference (recorded)
Webinar – 2020Philippe Marambaud, PhD and Andy White, MD discuss important advances in HHT research which were presented at the 2019 HHT International Scientific Conference in Puerto Rico. Learn about advancements in drug therapies for bleeding, screening and trea…
MoreExecutive Summary – 13th HHT International Scientific Conference (2019)
Scientific Literature – 2019Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
MoreAbstracts – 13th HHT International Scientific Conference (2019)
Scientific Literature – 2019Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
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Screening & Treatment of Brain AVMs in HHT (recorded)
Webinar – 2019Have you been screened for a brain AVM? If you have a brain AVM, do you know the guidelines for screening and treatment? Arteriovenous Malformations (AVMs) represent one of the most important manifestations of HHT. Dr. Issam Awad, Director of the Uni…
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HHT Scientific Conference Summaries (recorded)
Webinar – 2018Drs. Hughes, Faughnan and Andrejecsk provide a first hand synopsis of the HHT science presented in Dubrovnik, Croatia where over 200 voices were heard from 23 countries. They reviewed the 12th HHT International Conference Executive Summary of…
MoreSurgical Treatment vs Nonsurgical Treatment for Brain Arteriovenous Malformations in Patients with HHT: A Retrospective Multicenter Consortium Study
Scientific Literature – 2018Neurosurgery. Authors: Meybodi, AT, Kim, H., Nelson, J., Hetts, SW., Krings, T, terBrugge, KG, Faughnan, ME, Lawton, MT, and the Brain Vascular Malformation Consortium HHT Investigator Group. This article is available for public use and does not requ…
MoreAbstracts – 12th HHT International Scientific Conference (2017)
Scientific Literature – 2017Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
MoreExecutive Summary – 12th HHT International Scientific Conference (2017)
Scientific Literature – 2017Angiogenesis. Authors: Jillian W. Andrejecsk, Anna E. Hosman, Luisa M. Botella, Claire L. Shovlin, Helen M. Arthur, Sophie Dupuis-Girod, Elisabetta Buscarini, Christopher C. W. Hughes, Franck Lebrin, Christine L. Mummery, Marco C. Post, and Johannes…
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HHT & Stroke
Fact Sheet – 2016Strokes are very common in the general population and can be prevented in HHT. Strokes don’t just affect the elderly with HHT, they can affect children and young adults as well. Learn what causes a stroke and how to lower your risk.
MoreCerebrovascular Manifestations of Hereditary Hemorrhagic Telangiectasia
Scientific Literature – 2015Stroke. Authors: Waleed Brinjikji, Vivek N. Iyer, Thomas Sorenson, and Giuseppe Lanzino. This article is available for public use and does not require purchase. Click to view the full article.
MoreRelated News
Cure HHT Research Network: Clinician and Scientist Surveys
The Cure HHT Research Network has put together surveys for our medical and basic science communities that will help us to identify research priorities in HHT. Launched in early 2020, the Cure HHT Rese…
