Anemia/ Iron Deficiency
Resources addressing anemia/iron deficiency including causes, symptoms, and treatment options.
Related Resources
Rare Coagulation Disorders Resource Room – HHT
Scientific Literature – 2020Rare Bleeding Disorders – HHT Overview.
MoreBevacizumab (Avastin) Use In HHT
Policy Statement – 2020Hereditary hemorrhagic telangiectasia (HHT, also known as OslerWeber-Rendu Syndrome) is a condition that is characterized by focal proliferation of blood vessels (vascular malformations) in multiple organs. Two of the most commonly affected organs in…
MoreBevacizumab for treating HHT patients with severe hepatic involvement or refractory anemia
Scientific Literature – 2020PLoS One. Authors: Carolina Vázquez, María Laura Gonzalez, Augusto Ferraris, Juan Carlos Bandi, and Marcelo Martín Serra. This article is available for public use and does not require purchase. Click to view the full article.
MoreThe Science Behind the 2019 Scientific Conference (recorded)
Webinar – 2020Philippe Marambaud, PhD and Andy White, MD discuss important advances in HHT research which were presented at the 2019 HHT International Scientific Conference in Puerto Rico. Learn about advancements in drug therapies for bleeding, screening and trea…
MoreExecutive Summary – 13th HHT International Scientific Conference (2019)
Scientific Literature – 2019Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
MoreAbstracts – 13th HHT International Scientific Conference (2019)
Scientific Literature – 2019Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
MoreAnemia and Iron Deficiency in HHT (recorded)
Webinar – 2019Anemia is commonly experienced by those affected with HHT and it frequently results from bleeding of the nose and/or gastrointestinal tract. Dr. Adrienne Hammill, Director at the Cincinnati HHT Center of Excellence, discusses the most effective ways…
MoreEating for Health: Dietary Choices that Impact Bleeding
Webinar – 2019Ever wonder if certain foods trigger nosebleeds? Lisa Mannik, Registered Dietitian in the division of respirology at St. Michael’s Hospital HHT Centre in Toronto, Canada, identifies common foods that can increase the bleeding risk in HHT patients. Sh…
MoreSystemic bevacizumab for the treatment of chronic bleeding in HHT
Scientific Literature – 2018Journal of Internal Medicine. Authors: Al-Samkari, H., Kritharis, A., Rodriguez-Lopez, J.M., and Kuter, D.J. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
MorePazopanib May Reduce Bleeding in Hereditary Hemorrhagic Telangiectasia
Scientific Literature – 2018Angiogenesis. Authors: Marie E. Faughnan, James R. Gossage, Murali M. Chakinala, S. Paul Oh, Raj Kasthuri, Christopher C. W. Hughes, Justin P. McWilliams, Joseph G. Parambil, Nicholas Vozoris, Jill Donaldson, Gitanjali Paul, Pamela Berry, and Dennis…
MoreHHT: Diagnosis and Management from the Hematologist’s Perspective
Scientific Literature – 2018This review discusses the biology of HHT, management issues that face the practising hematologist, and considerations of future directions in HHT treatment. The diagnosis of hereditary hemorrhagic telangiectasia is clinical, based on the Curaçao crit…
MoreHHT: Diagnosis and Management from the Hematologist’s Perspective
Scientific Literature – 2018Haematologica. Authors: Athena Kritharis, Hanny Al-Samkari, and David J Kuter. This article is available for public use and does not require purchase. Click to view the full article.
MoreAvastin Indication Table
Article – 2018Table detailing Criteria for IV Bevacizumab (Avastin) Use for Epistaxis and GI Bleeding. Resource taken from: Iyer, V. N., Apala, D. R., Pannu, B. S., Kotecha, A., Brinjikji, W., Leise, M. D., … Swanson, K. L. Intravenous Bevacizumab for Ref…
MoreIntravenous Bevacizumab for Refractory Hereditary Hemorrhagic Telangiectasia Related Epistaxis and Gastrointestinal Bleeding
Scientific Literature – 2018Mayo Clinic. Authors: Vivek N. Iyer, MD, MPH; Dinesh R. Apala, MBBS; Bibek S. Pannu, MBBS; Aditya Kotecha, MBBS; Waleed Brinjikji, MD; Michael D. Leise, MD; Patrick S. Kamath, MD; Sanjay Misra, MD; Kebede H. Begna, MD; Rodrigo Cartin-Ceba, MD; Hilary…
MoreHHT Scientific Conference Summaries (recorded)
Webinar – 2018Drs. Hughes, Faughnan and Andrejecsk provide a first hand synopsis of the HHT science presented in Dubrovnik, Croatia where over 200 voices were heard from 23 countries. They reviewed the 12th HHT International Conference Executive Summary of…
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A Monumental $128 Million Step Forward for HHT Research
Today is a monumental day for HHT. The new biotechnology company, Diagonal Therapeutics, officially launched and we wanted to share more about why this is news you simply can’t miss! In short, Diagona…