What the HHT?
A blog for the HHT community
Webinar Registration
Ask the Nurse: A Conversation on Pediatric HHT
Upcoming Webinar: Ask the Nurse: A Conversation on Pediatric HHT Fri., April 10 | 12:00-1:00 p.m. ET When it comes to HHT, early recognition can make all the difference. Yet too many children remain vulnerable to late or missed diagnosis. In this educational session, Lynne Sekarski, MSN, RN, CPN, will discuss how to recognize…
Read MoreDiscovering the HHT Genes: A Fireside Chat with Douglas Marchuk
Upcoming Webinar: Discovering the HHT Genes: A Fireside Chat with Douglas Marchuk Thurs., March 19th | 12:00-1:30 p.m. ET In this session we will discuss How were the 3 HHT genes identified? What functions do these genes encode? How do the mutations cause HHT? Finally, what does all this mean for the search for…
Read MoreKnowledge is Power: The 5 Biggest Changes in HHT Care
Knowledge is Power: The 5 Biggest Changes in HHT Care Thurs., February 26th | 7:00 p.m. (ET) Our understanding of HHT is constantly evolving. If you haven’t been to a conference in a few years, or it’s been a while since you were last seen at a center of excellence – this session is…
Read MoreComprehensive Guide to Managing Your Nosebleeds
Webinar: Comprehensive Guide to Managing Your Nosebleeds Thurs., January 29th | 2:00 p.m. (ET) 90% of HHT patients deal with chronic and recurring nosebleeds –bleeds that can range in severity from killers of spontaneity, drive social anxiety or as severe as causing serious medical complications. However, many new treatment options are available to help…
Read MoreYour Questions Answered: An Informative Session on an HHT Clinical Trial
Upcoming Webinar: An Informative Session on an HHT Clinical Trial Thurs., September 11th | 5:00 p.m. (ET) Join us for an informative webinar about hereditary hemorrhagic telangiectasia (HHT). The webinar is being run by Cure HHT and will introduce an upcoming clinical trial evaluating whether an investigational medication has the potential to treat HHT.…
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