What the HHT?
A blog for the HHT community
Posts by Riley Blevins
International HHT Guidelines: Pulmonary (Lung) AVMs
International HHT Guidelines Webinar Series Topic: Pulmonary (Lung) AVMs Dr. Miles Conrad, Co-Director, University of California San Francisco HHT Center of Excellence and Dr. Mollie Meek, Director, University of Arkansas for Medical Sciences HHT Center of Excellence discuss how to recognize the signs and symptoms of Pulmonary (Lung) AVMs in HHT. Drs. Conrad and Meek further dissect…
Read MoreInternational HHT Guidelines: Pregnancy & Women’s Issues
International HHT Guidelines Webinar Series Topic: Pregnancy & Women’s Issues Mon., May 17th | 5:00 p.m. (ET) Join Dr. Filomena Meffe, Chief, Department of Obstetrics and Gynecology, Toronto HHT Centre of Excellence and Dr. Andrea Lausman, Maternal fetal medicine specialist, Toronto HHT Centre of Excellence as they discuss why pregnant woman with HHT should be…
Read MoreInternational HHT Guidelines: Pediatrics (Recorded)
International HHT Guidelines Webinar Series Topic: Pediatrics Join Dr. Andy White, Co-Director, St. Louis Children’s Hospital HHT Center of Excellence and Dr. Adrienne Hammill, Director, Cincinnati Children’s Hospital HHT Center of Excellence as they discuss the new pediatric international HHT guidelines. While some manifestations of HHT, such as telangiectasia and nosebleeds, are age dependent and…
Read MoreNuts and Bolts of a Clinical Trial – PATH-HHT Study (Recorded)
Nuts and Bolts of a Clinical Trial PATH-HHT Study Dr. Vivek Iyer, Director of the HHT Center of Excellence at Mayo Clinic and local site Principal Investigator for PATH-HHT Study, and Dr. Keith McCrae, Principal Investigator overseeing the PATH-HHT Study at the Cleveland Clinic HHT Center of Excellence introduce the audience to clinical trials, including…
Read MoreMeta: Accelerating Research on Rare Diseases
March 19, 2021 | Meta | By Jennifer L. Minnick “At a recent workshop about Meta, Executive Director of Cure HHT Marianne Clancy noticed a new scientific paper about the rare disease she’s focused on curing — in the form of a case report from Sudan. Hereditary Hemorrhagic Telangiectasia, or HHT, is a genetic disorder that causes…
Read More