What the HHT?
A blog for the HHT community
Posts by Riley Blevins
Patient & Physician Conferences Announced!
Join members of our HHT community – patients and physicians alike – as we come together for our both regional and national conferences to meet members of our local and extended HHT community, as well as learn more about HHT and share new scientific advancements. This year, medical professionals can now receive CME credits for participation!
Open registration dates will be released soon.
Read MoreThank You for an Amazing Year
We want to extend a heartfelt thank you as we celebrate an amazing year of community and progress in 2022. Watch a year in review here.
If you’d like to learn more about the cutting edge developments happening in HHT science and research, click here.
Read MoreHelp Keep Us On the Cutting Edge
The turn of the calendar to December marks the kickoff of our year-end appeal, and this year we are asking for your continued support to help keep us #OnTheCuttingEdge. The milestones we have our sights set on next are the kinds of things we could have only dreamed about just a few short years ago. A future exists where therapies – not surgeries – treat the chronic aspects of this disease. And that future is closer than you might realize!
Cure HHT remains a driving force for medical and scientific advancements in HHT, and throughout the month, we will be highlighting the transformational work being done…
Read MoreNEW! Text to Give
You can now support Cure HHT this holiday season via text! As an added bonus, when you make a donation through your mobile device, you can choose to receive future HHT news and updates directly to your phone. Message & data rates may apply. Donate today to have your gift DOUBLED by a generous group of donors. To give, text “donate” to (410) 237-0199.
Read MoreNew Therapeutic Development Arm Takes Shape
A Message From Marianne Clancy, Cure HHT Executive Director:
As you have read in the fall edition of our newsletter, our foundation has invested in the creation of a new “Therapeutic Development Arm” to help us more directly collaborate with the medical and scientific community to fast-track life-changing breakthroughs in HHT.
I am writing to you now to share the tremendously exciting news that Dr. Murali Chakinala will be joining Cure HHT in the role of Senior Clinical Research Advisor. In this role…
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