Talk Circle: Living With HHT Virtual Book Club Event
Talk Circle: Living With HHT Virtual Book Club Event Wed., February 24th | 7:00 p.m....
Cure HHT Research Network: Clinician and Scientist Surveys
The Cure HHT Research Network has put together surveys for our medical and basic science...
A WIN on Capitol Hill for HHT!
You may recall that back in November 2020, Cure HHT reached out for help to...
Beta Testers Needed for AnemoCheck Mobile App
Cure HHT and Sanguina have been working together to beta test a new smart phone...
NEW Research Surveys Available!
The Cure HHT Research Network ("CHRN") is an HHT patient-led research network that encourages the...
North American Standard of Care for the Screening of Brain & Lung VMs
There is always excitement associated with the publication of one of our important research studies...
Virtual Meet-Up: HHT & COVID – 1 Year Later (Recorded)
Sat., January 16th 12:00 p.m. (EST) Don’t miss this rare opportunity to receive factual information...
WEBINAR: Nociones básicas y generales sobre HHT (en español) (Recorded)
23 de Enero de 2021 12:30 p.m. (EST) El propósito de este primer webinar en...
“A Comprehensive Guide to Managing Your HHT” Publication – Now Available!
We've taken the Guidelines and distilled them into easily readable factsheets and checklists that can...
ACT NOW! HHT Federal Funding in Jeopardy!
Over the past few years, our HHT researchers have received significant funding for "Vascular Malformations,"...
Magic in the Making: Finding a Cure for HHT
Magic in the Making – Finding a Cure for HHT Saturday, November 21st 7-9 p.m....
The HHT Clinical Guidelines Are Here!
The HHT International Guidelines are used in HHT Centers of Excellence (CoE) worldwide for clinical...
