Cure HHT Announcements

Presentacion - HHT Generalidades y nociones básicas

WEBINAR: Nociones básicas y generales sobre HHT (en español) (Recorded)

23 de Enero de 2021 12:30 p.m. (EST) El propósito de este primer webinar en...
Guidelines Booklet_Spread Collage_2pagewhite

“A Comprehensive Guide to Managing Your HHT” Publication – Now Available!

We've taken the Guidelines and distilled them into easily readable factsheets and checklists that can...
Federal Funding

ACT NOW! HHT Federal Funding in Jeopardy!

Over the past few years, our HHT researchers have received significant funding for "Vascular Malformations,"...
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Magic in the Making: Finding a Cure for HHT

Magic in the Making – Finding a Cure for HHT Saturday, November 21st 7-9 p.m....
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The HHT Clinical Guidelines Are Here!

The HHT International Guidelines are used in HHT Centers of Excellence (CoE) worldwide for clinical...
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Fall Into Fitness

Fall Into Fitness November 22, 2020 | 9:30 a.m. (EST) Join Eve Bondareva for a...

11th Annual Stoner Open

11th Annual Stoner Open October 22, 2020 | 1:30 p.m. (EST) Farmstead Golf & Country...
Voss, Lindsay - hospital

Lindsay Vos Delivers Keynote Speech at the HFA Annual Symposium

Many of you may recognize Lindsay Vos’s name, and if you’ve ever had the opportunity to...
Hughes, Chris - GRMAB Chair

Cure HHT’s 2020 Robert E. Berkman Leadership Award Recipient

Up Close and Personal with Christopher Hughes, PhD - Cure HHT's 2020 Robert E. Berkman...
Pyeritz, Reed

Top Geneticist and HHT CoE Director Announces Retirement

We are at once happy and sad to announce the retirement of Reed Pyeritz, MD,...
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HHT Education at the National Hemophilia Foundation Annual Conference

This August, Dr. Raj Kasthuri, our HHT Center of Excellence Director from the University of...
Ask the Doctor - McBride & Olitsky

Ask The Doctor: Nosebleed Management 101 (Recorded)

ASK THE DOCTOR: NOSEBLEED MANAGEMENT 101   Watch our “Ask the Doctor” series with Dr....
HHT Billboard

HHT Awareness in a BIG Way!

This June Awareness Month, Cure HHT was able to spread awareness in a huge way...
Ask the Doctor

Ask the Doctor – HHT and PH (recorded)

Dr. Scott Olitsky, Cure HHT Chief Medical Officer, and Michael Knaapen, Director, Patient and Caregiver...
COVID Survey

SURVEY: COVID-19 and Rare Disease Research

Cure HHT has partnered with Genetic Alliance and we need your help! Your voice is urgently needed in...