Cure HHT Announcements

11th Annual Stoner Open

11th Annual Stoner Open October 22, 2020 | 1:30 p.m. (EST) Farmstead Golf & Country...
Voss, Lindsay - hospital

Lindsay Vos Delivers Keynote Speech at the HFA Annual Symposium

Many of you may recognize Lindsay Vos’s name, and if you’ve ever had the opportunity to...
Hughes, Chris - GRMAB Chair

Cure HHT’s 2020 Robert E. Berkman Leadership Award Recipient

Up Close and Personal with Christopher Hughes, PhD - Cure HHT's 2020 Robert E. Berkman...
Pyeritz, Reed

Top Geneticist and HHT CoE Director Announces Retirement

We are at once happy and sad to announce the retirement of Reed Pyeritz, MD,...
NHF_Kasthuri_Slide

HHT Education at the National Hemophilia Foundation Annual Conference

This August, Dr. Raj Kasthuri, our HHT Center of Excellence Director from the University of...
Ask the Doctor - McBride & Olitsky

Ask The Doctor: Nosebleed Management 101 (Recorded)

ASK THE DOCTOR: NOSEBLEED MANAGEMENT 101   Watch our “Ask the Doctor” series with Dr....
HHT Billboard

HHT Awareness in a BIG Way!

This June Awareness Month, Cure HHT was able to spread awareness in a huge way...
Ask the Doctor

Ask the Doctor – HHT and PH (recorded)

Dr. Scott Olitsky, Cure HHT Chief Medical Officer, and Michael Knaapen, Director, Patient and Caregiver...
COVID Survey

SURVEY: COVID-19 and Rare Disease Research

Cure HHT has partnered with Genetic Alliance and we need your help! Your voice is urgently needed in...
Managing Stress and Emotional Hurdles1

Managing Stress and Emotional Hurdles in HHT (recorded)

Dr. Abbey Hughes, board-certified rehabilitation psychologist and assistant professor in the Department of Physical Medicine...
RL Meet-Up Graphic-01

Virtual Meet-Up: New Cure HHT Resource Library (recorded)

On May 20, 2020, Nicole Schaefer, Director of Medical and Scientific Programs and Phyllis Loveland,...
Cure HHT 2020 Newsletter Image

Cure HHT Spring 2020 Newsletter: Now Available!

Palmer-Mind Over Matter

Virtual Meet-Up: COVID-19 “Mind Over Matter” (recorded)

On March 26, 2020, Sara Palmer, PhD, retired psychologist, Cure HHT President and author, along...
COVID19_webicon2

Announcement from Cure HHT Executive Director (COVID-19)

A Message from Cure HHT Executive Director, Marianne Clancy To our HHT Community: Two years...
Seattle - Save the Date mailer

Patient & Physician Conference – Washington (Postponed)

Hyatt Regency - Bellevue, Washington **POSTPONED** Join us at our Patient & Physician conference in Washington...