Cure HHT and Sanguina have been working together to beta test a new smart phone app that will allow users to check their hemoglobin anytime with their smartphone. We previously invited you to complete a survey to determine your eligibility to participate in the beta testing for the app. Phase 1 of the beta testing (with a limited number of users is complete). Now, we are looking for more users to help in the beta testing.
We are looking for HHT patients that fit the following criteria:
- Patients that have their hemoglobin tested by a laboratory at least once a month on average.
- Patients that would be willing to join a private Facebook group to allow discussion of the app and allow for community engagement with feedback. The group will also allow for access to help using the app.
- Patients will need to upload their laboratory data into the app when they obtain their hemoglobin information as well as record a reading from the app on the same day.
- Patients will need to consent to having Sanguina see that is entered into the app. The information, as well as the user ID, will remain private, will not be shared or distributed and will only be used to improve the algorithm of the app to improve its security.
If you are interested in participating in this project, look for the Facebook group HHT AnemoCheck Mobile App Users Group and request to join. This group has been created specifically to assist in beta testing of the new smartphone anemia app.