NEW Research Surveys Available!
The Cure HHT Research Network ("CHRN") is an HHT patient-led research network that encourages the...
North American Standard of Care for the Screening of Brain & Lung VMs
There is always excitement associated with the publication of one of our important research studies...
Virtual Meet-Up: HHT & COVID – 1 Year Later (Recorded)
Sat., January 16th 12:00 p.m. (EST) Don’t miss this rare opportunity to receive factual information...
WEBINAR: Nociones básicas y generales sobre HHT (en español) (Recorded)
23 de Enero de 2021 12:30 p.m. (EST) El propósito de este primer webinar en...
“A Comprehensive Guide to Managing Your HHT” Publication – Now Available!
We've taken the Guidelines and distilled them into easily readable factsheets and checklists that can...
ACT NOW! HHT Federal Funding in Jeopardy!
Over the past few years, our HHT researchers have received significant funding for "Vascular Malformations,"...
Magic in the Making: Finding a Cure for HHT
Magic in the Making – Finding a Cure for HHT Saturday, November 21st 7-9 p.m....
The HHT Clinical Guidelines Are Here!
The HHT International Guidelines are used in HHT Centers of Excellence (CoE) worldwide for clinical...
11th Annual Stoner Open
11th Annual Stoner Open October 22, 2020 | 1:30 p.m. (EST) Farmstead Golf & Country...
Lindsay Vos Delivers Keynote Speech at the HFA Annual Symposium
Many of you may recognize Lindsay Vos’s name, and if you’ve ever had the opportunity to...
Cure HHT’s 2020 Robert E. Berkman Leadership Award Recipient
Up Close and Personal with Christopher Hughes, PhD - Cure HHT's 2020 Robert E. Berkman...
Top Geneticist and HHT CoE Director Announces Retirement
We are at once happy and sad to announce the retirement of Reed Pyeritz, MD,...
