Cure HHT Announcements

Ask the Doctor - McBride & Olitsky

Ask The Doctor: Nosebleed Management 101 (Recorded)

ASK THE DOCTOR: NOSEBLEED MANAGEMENT 101   Watch our “Ask the Doctor” series with Dr....
HHT Billboard

HHT Awareness in a BIG Way!

This June Awareness Month, Cure HHT was able to spread awareness in a huge way...
Ask the Doctor

Ask the Doctor – HHT and PH (recorded)

Dr. Scott Olitsky, Cure HHT Chief Medical Officer, and Michael Knaapen, Director, Patient and Caregiver...
COVID Survey

SURVEY: COVID-19 and Rare Disease Research

Cure HHT has partnered with Genetic Alliance and we need your help! Your voice is urgently needed in...
Managing Stress and Emotional Hurdles1

Managing Stress and Emotional Hurdles in HHT (recorded)

Dr. Abbey Hughes, board-certified rehabilitation psychologist and assistant professor in the Department of Physical Medicine...
RL Meet-Up Graphic-01

Virtual Meet-Up: New Cure HHT Resource Library (recorded)

On May 20, 2020, Nicole Schaefer, Director of Medical and Scientific Programs and Phyllis Loveland,...
Cure HHT 2020 Newsletter Image

Cure HHT Spring 2020 Newsletter: Now Available!

Palmer-Mind Over Matter

Virtual Meet-Up: COVID-19 “Mind Over Matter” (recorded)

On March 26, 2020, Sara Palmer, PhD, retired psychologist, Cure HHT President and author, along...
COVID19_webicon2

Announcement from Cure HHT Executive Director (COVID-19)

A Message from Cure HHT Executive Director, Marianne Clancy To our HHT Community: Two years...
Seattle - Save the Date mailer

Patient & Physician Conference – Washington (Postponed)

Hyatt Regency - Bellevue, Washington **POSTPONED** Join us at our Patient & Physician conference in Washington...
Marianne - Rare Leader

Global Genes – Cure HHT’s Marianne Clancy Named “Rare Leader”

Aurora_Postponed

Walk & Talk – Aurora, Colorado (POSTPONED)

Aurora, Colorado Our inaugural Cure HHT Walk & Talk Event in Aurora, Colorado has been...
CZI Announcement - Post Image

HHT is Rare As One!

Cure HHT has been selected as 1 of only 30 organizations out of 287 that submitted...
SciCon 2019 - PowerPoint Slide

Recorded WEBINAR: The Science Behind the 2019 Scientific Conference

Now available!
Angiogenesis Cover Vol. 22 No.4

2019 SciCon – Angiogenesis Publications

The executive summary and abstracts from the 2019 HHT International Scientific Conference, including details of...