Root for Awareness – Crowdfunding Campaign

This year, in place of our virtual walk - Strides for Strength - we thought...

Seattle National Conference

HHT Patient & Physician Conference Seattle, Washington | June 3-4, 2023 We’re thrilled to be...

HHT Patient & Physician Conference Denver, Colorado | March 25, 2023 Don't miss your chance...

Increasing access to specialized care is an important part of Cure HHT’s mission. We’ve made...

The PATH Study is exploring the use of an oral medication called pomalidomide for the...

February is Rare Disease Month and once again, you can honor someone special to you who is...

We want to extend a heartfelt thank you as we celebrate an amazing year of...

You can now support Cure HHT this holiday season via text! As an added bonus,...

Giving Tuesday is the largest global day of generosity – where people around the world...

Scan the pages of our printed 2022 newsletters (spring, summer and fall) as a pdf...

On behalf of the Organizing Committee, we would like to invite you to join us...

Duke University, through a separate BVMC project, is collecting vascular malformations () associated with HHT...

TDC Leaps for a Cure - 2nd annual walk to cure HHT. The TDC dance...

The Rare Genomes Project is a patient-driven research project through the Broad Institute that performs...

Cure HHT is excited to announce that UF Health has been named the first HHT...