Cure HHT Announcements

Newsletter - Web box

Cure HHT Spring 2021 Newsletter: Now Available!

Scan the pages of our printed Spring newsletter, which hit mailboxes in early June, as...
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New HHT-HTC Treatment Centers

Cure HHT is excited to announce that the HHT-HTC Treatment Centers, part of Michigan Medicine...
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Spotlight on Rare Disease – HHT Featured on Biorasi Rare Disease Podcast

Check out the sneak preview of Episode 4 of Few & Far Between, Biorasi’s rare...
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30 Years Strong Highlights

With your support, Cure HHT has accomplished so much, and the best is yet to...
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30th Anniversary Celebration

Cure HHT’s 30th Anniversary kick-off is a virtual celebration was a huge success, with with...
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Friends Virtual Trivia

Do the names Monica, Chandler, Ross, Rachel, Joey and Phoebe ring a bell? Then don’t...
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Let’s Play! Virtual Trivia

Calling all Masters of Random Facts, Extraordinary Guessers, Jeopardy Aficionados and Trivial Pursuit Junkies— this...
Book Club

Talk Circle: Living With HHT Virtual Book Club Event

Talk Circle: Living With HHT Virtual Book Club Event Wed., February 24th | 7:00 p.m....
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Cure HHT Research Network: Clinician and Scientist Surveys

The Cure HHT Research Network has put together surveys for our medical and basic science...
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A WIN on Capitol Hill for HHT!

You may recall that back in November 2020, Cure HHT reached out for help to...
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Beta Testers Needed for AnemoCheck Mobile App

Cure HHT and Sanguina have been working together to beta test a new smart phone...
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NEW Research Surveys Available!

The Cure HHT Research Network ("CHRN") is an HHT patient-led research network that encourages the...
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North American Standard of Care for the Screening of Brain & Lung VMs

There is always excitement associated with the publication of one of our important research studies...
Meet-Up - COVID Panel(a)

Virtual Meet-Up: HHT & COVID – 1 Year Later (Recorded)

Sat., January 16th 12:00 p.m. (EST) Don’t miss this rare opportunity to receive factual information...
Presentacion - HHT Generalidades y nociones básicas

WEBINAR: Nociones básicas y generales sobre HHT (en español) (Recorded)

23 de Enero de 2021 12:30 p.m. (EST) El propósito de este primer webinar en...