Cure HHT Announcements

Friends Trivia Night Benefit_amw

Friends Virtual Trivia

Do the names Monica, Chandler, Ross, Rachel, Joey and Phoebe ring a bell? Then don’t...
Cure HHT Trivia Night - Charm City Trivia-01

Let’s Play! Virtual Trivia

Calling all Masters of Random Facts, Extraordinary Guessers, Jeopardy Aficionados and Trivial Pursuit Junkies— this...
Book Club

Talk Circle: Living With HHT Virtual Book Club Event

Talk Circle: Living With HHT Virtual Book Club Event Wed., February 24th | 7:00 p.m....
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Cure HHT Research Network: Clinician and Scientist Surveys

The Cure HHT Research Network has put together surveys for our medical and basic science...
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A WIN on Capitol Hill for HHT!

You may recall that back in November 2020, Cure HHT reached out for help to...
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Beta Testers Needed for AnemoCheck Mobile App

Cure HHT and Sanguina have been working together to beta test a new smart phone...
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NEW Research Surveys Available!

The Cure HHT Research Network ("CHRN") is an HHT patient-led research network that encourages the...
Kilian - Screening for pulmonary VMs in North American - publication image 2020

North American Standard of Care for the Screening of Brain & Lung VMs

There is always excitement associated with the publication of one of our important research studies...
Meet-Up - COVID Panel(a)

Virtual Meet-Up: HHT & COVID – 1 Year Later (Recorded)

Sat., January 16th 12:00 p.m. (EST) Don’t miss this rare opportunity to receive factual information...
Presentacion - HHT Generalidades y nociones básicas

WEBINAR: Nociones básicas y generales sobre HHT (en español) (Recorded)

23 de Enero de 2021 12:30 p.m. (EST) El propósito de este primer webinar en...
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“A Comprehensive Guide to Managing Your HHT” Publication – Now Available!

We've taken the Guidelines and distilled them into easily readable factsheets and checklists that can...
Federal Funding

ACT NOW! HHT Federal Funding in Jeopardy!

Over the past few years, our HHT researchers have received significant funding for "Vascular Malformations,"...
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Magic in the Making: Finding a Cure for HHT

Magic in the Making – Finding a Cure for HHT Saturday, November 21st 7-9 p.m....
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The HHT Clinical Guidelines Are Here!

The HHT International Guidelines are used in HHT Centers of Excellence (CoE) worldwide for clinical...
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Fall Into Fitness

Fall Into Fitness November 22, 2020 | 9:30 a.m. (EST) Join Eve Bondareva for a...