Skip to content

Cure HHT Announcements

Let the World Hear Us - Social Share

June Awareness Month

HHT Awareness Month is here, and we are expanding our reach on a world-wide level...
Website Post_Global Awareness Day

HHT Global Awareness Day

HHT Global Awareness Day (June 23rd) Get loud and #LetTheWorldHearUs In recognition of awareness day,...
SFS22 - use for social share

Strides for Strength

Join members of the HHT community around the world for our 3rd annual global virtual walk for a...
PH & HHT - Chakinala

PH & HHT – Signs, Symptoms
& Disease Management (Recorded)

PH and HHT: Signs, Symptoms & Disease Management Join PHA and Cure HHT for the...
Federal Funding

Federal Funding Secured for U.S. Centers of Excellence

A message from Cure HHT Executive Director, Marianne Clancy It is with tearful joyfulness that...
Frontlines - March 2022_cvr_web

Cure HHT Scientific Newsletter

Twice a year, Cure HHT collaborates with its global research and medical advisory board to...
CHRN 2022

CHRN: Creating a Roadmap for the Future

A Message from Marianne Clancy, Cure HHT Executive Director Transformational. That’s the word that keeps...
CHRN 2022 Conference (Boston, MA)

1st CHRN Conference Convening

The 1st Cure HHT Research Network International Convening is just around the corner and taking place...
FB Live Event_Olitsky_web post image

FB Live Event: Dr. Scott Olitsky – Are Clinical Trials Right for Me?

Join Cure HHT Chief Medical Officer, Scott Olitsky, MD for a Facebook live event as...
BVMC_brain image_web post

Suffer from brain AVMs? You can help further HHT research today

Cure HHT, along with HHT Centers of Excellence across North America, are now actively recruiting...
Kisses for a Cure - web post image2

Help KISS HHT goodbye!

February is Rare Disease Month and we want to SHOW OUR STRIPES in a big way! During our Kisses...
Rare Disease Swag_store_web post image

HHT Rare! Grab Your Swag

Pick up your HHT RARE swag today during Rare Disease Awareness Month in our online...
CZI Announcement 2

Rare as One: Cure HHT receives CZI grant extension

We are thrilled to announce that our grant in the Chan Zuckerberg Initiative – Rare...
Scroll To Top