Cure HHT Announcements

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Beta Testers Needed for AnemoCheck Mobile App

Cure HHT and Sanguina have been working together to beta test a new smart phone...
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NEW Research Surveys Available!

The Cure HHT Research Network ("CHRN") is an HHT patient-led research network that encourages the...
Kilian - Screening for pulmonary VMs in North American - publication image 2020

North American Standard of Care for the Screening of Brain & Lung VMs

There is always excitement associated with the publication of one of our important research studies...
Meet-Up - COVID Panel(a)

Virtual Meet-Up: HHT & COVID – 1 Year Later (Recorded)

Sat., January 16th 12:00 p.m. (EST) Don’t miss this rare opportunity to receive factual information...
Presentacion - HHT Generalidades y nociones básicas

WEBINAR: Nociones básicas y generales sobre HHT (en español) (Recorded)

23 de Enero de 2021 12:30 p.m. (EST) El propósito de este primer webinar en...
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“A Comprehensive Guide to Managing Your HHT” Publication – Now Available!

We've taken the Guidelines and distilled them into easily readable factsheets and checklists that can...
Federal Funding

ACT NOW! HHT Federal Funding in Jeopardy!

Over the past few years, our HHT researchers have received significant funding for "Vascular Malformations,"...
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Magic in the Making: Finding a Cure for HHT

Magic in the Making – Finding a Cure for HHT Saturday, November 21st 7-9 p.m....
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The HHT Clinical Guidelines Are Here!

The HHT International Guidelines are used in HHT Centers of Excellence (CoE) worldwide for clinical...
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Fall Into Fitness

Fall Into Fitness November 22, 2020 | 9:30 a.m. (EST) Join Eve Bondareva for a...

11th Annual Stoner Open

11th Annual Stoner Open October 22, 2020 | 1:30 p.m. (EST) Farmstead Golf & Country...
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Lindsay Vos Delivers Keynote Speech at the HFA Annual Symposium

Many of you may recognize Lindsay Vos’s name, and if you’ve ever had the opportunity to...
Hughes, Chris - GRMAB Chair

Cure HHT’s 2020 Robert E. Berkman Leadership Award Recipient

Up Close and Personal with Christopher Hughes, PhD - Cure HHT's 2020 Robert E. Berkman...
Pyeritz, Reed

Top Geneticist and HHT CoE Director Announces Retirement

We are at once happy and sad to announce the retirement of Reed Pyeritz, MD,...
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HHT Education at the National Hemophilia Foundation Annual Conference

This August, Dr. Raj Kasthuri, our HHT Center of Excellence Director from the University of...