Cure HHT Announcements

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Suffer from brain AVMs? You can help further HHT research today

Cure HHT, along with HHT Centers of Excellence across North America, are now actively recruiting...
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Help KISS HHT goodbye!

February is Rare Disease Month and we want to SHOW OUR STRIPES in a big way! During our Kisses...
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HHT Rare! Grab Your Swag

Pick up your HHT RARE swag today during Rare Disease Awareness Month in our online...
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Rare as One: Cure HHT receives CZI grant extension

We are thrilled to announce that our grant in the Chan Zuckerberg Initiative – Rare...
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FREE Genetic Testing for Rare Diseases

The Rare Genomes Project is a patient-driven research project through the Broad Institute that performs...
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AnemoCheck Mobile App

AnemoCheck Mobile - the world’s first non-invasive, equipment-free smartphone app for noninvasive and instant hemoglobin...
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Cure HHT Participates in PHA’s Associated Conditions Summit

Individuals with HHT have a greater risk of developing pulmonary hypertension. Statistically, 15-20% of HHT...
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Shop for a cause. Shop for a cure. Shop Cure HHT! 

Shopping for a cure has never been easier! Our new Cure HHT store, hosted by...
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CDC Features HHT in Popular Webinar Series

One of the biggest challenges facing HHT patients continues to be the lack of HHT...
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Barrow Neurological Institute named new HHT Center of Excellence

Cure HHT recognizes centers equipped with the personnel, expertise, commitment, and resources to provide comprehensive...
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Cure HHT Spring 2021 Newsletter: Now Available!

Scan the pages of our printed Spring newsletter, which hit mailboxes in early June, as...
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New HHT-HTC Treatment Centers

Cure HHT is excited to announce that the HHT-HTC Treatment Centers, part of Michigan Medicine...
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Spotlight on Rare Disease – HHT Featured on Biorasi Rare Disease Podcast

Check out the sneak preview of Episode 4 of Few & Far Between, Biorasi’s rare...
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30 Years Strong Highlights

With your support, Cure HHT has accomplished so much, and the best is yet to...
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30th Anniversary Celebration

Cure HHT’s 30th Anniversary kick-off is a virtual celebration was a huge success, with with...