Cure HHT Announcements

Federal Funding

Federal Funding Secured for U.S. Centers of Excellence

A message from Cure HHT Executive Director, Marianne Clancy It is with tearful joyfulness that...
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Cure HHT Scientific Newsletter

Twice a year, Cure HHT collaborates with its global research and medical advisory board to...
CHRN 2022

CHRN: Creating a Roadmap for the Future

A Message from Marianne Clancy, Cure HHT Executive Director Transformational. That’s the word that keeps...
CHRN 2022 Conference (Boston, MA)

1st CHRN Conference Convening

The 1st Cure HHT Research Network International Convening is just around the corner and taking place...
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PATH Clinical Trial – Now Recruiting!

The PATH Study is exploring the use of an oral medication called pomalidomide for the...
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FB Live Event: Dr. Scott Olitsky – Are Clinical Trials Right for Me?

Join Cure HHT Chief Medical Officer, Scott Olitsky, MD for a Facebook live event as...
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Suffer from brain AVMs? You can help further HHT research today

Cure HHT, along with HHT Centers of Excellence across North America, are now actively recruiting...
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Help KISS HHT goodbye!

February is Rare Disease Month and we want to SHOW OUR STRIPES in a big way! During our Kisses...
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HHT Rare! Grab Your Swag

Pick up your HHT RARE swag today during Rare Disease Awareness Month in our online...
CZI Announcement 2

Rare as One: Cure HHT receives CZI grant extension

We are thrilled to announce that our grant in the Chan Zuckerberg Initiative – Rare...
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AnemoCheck Mobile App

AnemoCheck Mobile - the world’s first non-invasive, equipment-free smartphone app for noninvasive and instant hemoglobin...
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Cure HHT Participates in PHA’s Associated Conditions Summit

Individuals with HHT have a greater risk of developing pulmonary hypertension. Statistically, 15-20% of HHT...
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Shop for a cause. Shop for a cure. Shop Cure HHT! 

Shopping for a cure has never been easier! Our new Cure HHT store, hosted by...
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CDC Features HHT in Popular Webinar Series

One of the biggest challenges facing HHT patients continues to be the lack of HHT...
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Barrow Neurological Institute named new HHT Center of Excellence

Cure HHT recognizes centers equipped with the personnel, expertise, commitment, and resources to provide comprehensive...