How to Be an HHT Changemaker Part 1: Drive Research (Recorded)

Participating in research is the ultimate way to be an HHT changemaker. We have two exciting new projects to share with you, HHT Connect and the Cure HHT BioBank.

Courtney Kasturiarachi, MPH, walks you through everything you need to know about HHT Connect, The Global Patient Registry. Hear more about what a patient registry is, what this means for HHT patients, and how to enroll and take your surveys in 3 easy steps.

Cassi Friday, PhD, presents on how your tissue donations can propel HHT research!

Webinar – June, 2024

Patient topics: Anemia/ Iron Deficiency, Brain, Drug Therapy, Gastrointestinal, Genetics, HHT in children, Heart, Liver, Lungs, Mental Health, Newly Diagnosed, Nosebleeds, Pregnancy & Women’s Issues, Skin