What the HHT?
A blog for the HHT community
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HHT Frontlines: Spring 2022 Flipbook
Support HHT Centers of Excellence through HRSA!
We made it through the House, but now we need final Senate support! Thanks to your recent advocacy, in July 2021 the U.S. House of Representatives approved legislation that included $2 million in funding that would go directly to a new “National HHT Diagnosis and Treatment Initiative,” providing funds to our existing CoEs to expand staffing and…
Read MoreNYMAC Genetic Counseling Survey
The University of Arkansas for Medical Sciences is offering an opportunity to participate in a research study aimed at assessing a gap in genetic counseling literature involving the Hispanic/Latinx population. **Eligible participants can be anyone who lives in the USA or its territories, aged 18-79, whose primary language is Spanish** Click here to be redirected…
Read MoreGiving Tuesday 2021
Giving Tuesday is here! Donate today! Each year on this day of global unity, we watch in awe the power that people and organizations possess to transform their communities (and the world) with acts of generosity and kindness. It’s something truly special to witness! Donate today to help save children like Qadri, Anthony and Molly…
Read MoreLas Guías Internacionales de HHT: Epistaxis – Tratamiento Farmacológico
Las Guías Internacionales de HHT Epistaxis en HHT: Tratamiento Farmacológico (solo en español) El Dr. Marcelo Serra, Director de la Unidad de HHT del Hospital Italiano de Buenos Aires brinda información sobre el tratamiento farmacológico no quirúrgico del sangrado nasal en HHT. También revisó las recomendaciones de las nuevas Directrices internacionales de HHT para el…
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