Brain
Resources addressing HHT-related issues that affect the brain including cerebral AVMs, hemorrhage stroke, ischemic stroke, brain abscess, migraines and seizures. This section will include screening recommendations and treatment options.
Related Resources
HHT & Stroke
Fact Sheet – 2016Strokes are very common in the general population and can be prevented in HHT. Strokes don’t just affect the elderly with HHT, they can affect children and young adults as well. Learn what causes a stroke and how to lower your risk.
MoreCerebrovascular Manifestations of Hereditary Hemorrhagic Telangiectasia
Scientific Literature – 2015Stroke. Authors: Waleed Brinjikji, Vivek N. Iyer, Thomas Sorenson, and Giuseppe Lanzino. This article is available for public use and does not require purchase. Click to view the full article.
MoreExecutive Summary – 11th HHT International Scientific Conference (2015)
Scientific Literature – 2015Angiogenesis. Authors: Helen Arthur, Urban Geisthoff, James R. Gossage, Christopher C. W. Hughes, Pascal Lacombe, Mary E. Meek, Paul Oh, Beth L Roman, Scott O. Trerotola, Sebastiaan Velthuis, and Whitney Wooderchak-Donahue. This article can be purcha…
MoreAbstracts – 11th HHT International Scientific Conference (2015)
Scientific Literature – 2015Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
MoreLower Risk of Intracranial Arteriovenous Malformation Hemorrhage in Patients with HHT
Scientific Literature – 2015Neurosurgery. Authors: Wuyang Yang, Ann Liu, Alice L. Hung, Maria Braileanu, Joanna Y. Wang, Justin M. Caplan, Geoffrey P. Colby, Alexander L. Coon, Rafael J. Tamargo, Edward S. Ahn, and Judy Huang. This article can be purchased directly from the pub…
MoreHemorrhage Rates from Brain Arteriovenous Malformation in Patients with HHT
Scientific Literature – 2015Stroke. Authors: Helen Kim, Jeffrey Nelson, Timo Krings, Karel G. terBrugge, Charles E. McCulloch, Michael T. Lawton, William L. Young, Marie E. Faughnan, and the Brain Vascular Malformation Consortium HHT Investigator Group. This article is availabl…
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Brain Vascular Malformations in HHT: Knowledge is the Key (recorded)
Webinar – 2015Dr. Marie Faughnan, Director of the HHT Center of Excellence at the University of Toronto / St. Michael’s Hospital, Scientific Research Director for Cure HHT, reviews the management and treatment protocols for brain AVMs in HHT patients. Dr. Faughnan…
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Cerebral Abscesses among Danish Patients with HHT
Scientific Literature – 2013Acta Neurol Scandinavica. Authors: A. D. Kjeldsen, P. M. Tørring, H. Nissen, and P. E. Andersen. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
MoreBrain Vascular Malformation Consortium: Overview, Progress, and Future Directions
Scientific Literature – 2013Semantic Scholar. Authors: Amy Akers, Karen Le Ball, Marianne S. Clancy, Anne M Comi, Marie E. Faughnan, Thomas P. Jacobs, Helen Kim, Jeffrey P. Krischer, Douglas A. Marchuk, Charles E. McCulloch, Leslie Morrison, Marsha A. Moses, Ludmila Pawlikowska…
MoreBrain AVM Multiplicity Predicts the Diagnosis of HHT: Quantitative Assessment
Scientific Literature – 2011Stroke. Authors: Aditya Bharatha, Marie E. Faughnan, Helen Kim, Tony Pourmohamad, Timo Krings, Pinar Bayrak-Toydemir, Ludmila Pawlikowska, Charles E. McCulloch, Michael T. Lawton, Christopher F. Dowd, William L. Young, and Karel G. Terbrugge. This ar…
MoreBiology of Vascular Malformations of the Brain
Scientific Literature – 2009Stroke. Authors: Gabrielle G. Leblanc, Ph.D., Eugene Golanov, M.D., Ph.D., Issam A. Awad, M.D., William L. Young, M.D., and Biology of Vascular Malformations of the Brain NINDS Workshop Collaborators. This article is available for public use and does…
MorePulmonary Arteriovenous Malformations and Migraine: A New Vision
Scientific Literature – 2008Respiration. Authors: M. C. Post, M. W. F. van Gent, R. J. Snijder, J. J. Mager, W. J. Schonewille, H. W. M. Plokker, and C. J. J. Westermann. This article can be purchased directly from the publisher. Click to view the article description and purcha…
MoreA Pulmonary Right-to-Left Shunt in Patients with HHT is Associated with an Increased Prevalence of Migraine
Scientific Literature – 2005CHEST. Authors: Martijn C. Post, MDa, Tom G.W. Letteboer, MDb, Johannes J. Mager, MD, PhDb, Thijs H. Plokker, MD, PhDa, Johannes C. Kelder, MDa, and Cornelius J.J. Westermann, MD, PhD. This article can be purchased directly from the publisher. Click…
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The Curacao Criteria: Consensus Diagnostic Criteria for HHT
Guidelines – 2000Author: Claire Shovlin, PhD.
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