News & Resources

Since Cure HHT was established 25 years ago, we have been dedicated to providing answers to every question we can about HHT for patients, caregivers, doctors and researchers. Cure HHT remains the primary source for the most recent and reliable information about Hereditary Hemorrhagic Telangiectasia.

Latest News

Cure HHT Leads Global Breakthrough in Bleeding Standards, Paving the Way for Future HHT Therapies

A newly published international consensus report—developed under the leadership of Cure HHT, the only nonprofit organization in the world dedicated to funding global research, awareness,...

A History of Pazopanib

There are no FDA-approved therapeutics for the treatment of HHT. Cure HHT sought to change that. In many ways, the history of pazopanib is not...

This Landmark HHT Study Could Shift National Attention

We’re excited to share some truly important news for the HHT community. A major new study done in collaboration between Cure HHT, Massachusetts General Hospital,...

HHT Resources

Cure HHT is happy to provide a wide array of resources for patients, families, physicians and researchers. Be sure to check out our extensive resource library that houses fact sheets, brochures, publications, and all of our educational webinars.

Resource Library

2611035_Awareness25MentalHealth_1080x1080_2_052925

Mental Health & HHT (Recorded)

Iron Replacement in HHT

Entering the Therapeutics Age: A New Era for HHT Treatment (Recorded)

2490100_SclerotherapyWebinarGraphic-Due10.31-2_102924

A New Option for Chronic Nosebleeds: Is Sclerotherapy Right for You? (Recorded)

United States Map of Nasal Sclerotherapy Providers

Stopping the Flow: A Comprehensive Guide to HHT Nosebleed Management (Recorded)

Mi CHECKLIST Sobre: HHT Cuidados

Mi CHECKLIST Sobre HHT Cuidados: Diagnóstico

Mi CHECKLIST Sobre HHT Cuidados: Mi Hijo

Explore Resource Library

HHT Treatment Centers

With an entire team of dedicated specialists to coordinate care, the HHT Treatment Centers of Excellence are the best place to access expert HHT care.

LEARN MORE

Webinars

See what webinars we have coming up so you can watch them LIVE and get your questions answered in real time! You can also view our past webinars, with topics including (but not limited to!) insurance, AVMs, research, genetics, and children with HHT.

LEARN MORE