News & Resources

Since Cure HHT was established 25 years ago, we have been dedicated to providing answers to every question we can about HHT for patients, caregivers, doctors and researchers. Cure HHT remains the primary source for the most recent and reliable information about Hereditary Hemorrhagic Telangiectasia.

Latest News

Innovative Hematology Achieves Prestigious HHT Center of Excellence Certification

We are thrilled to share that Innovative Hematology, home to the Indiana Hemophilia and Thrombosis Center (IHTC), has officially earned the coveted designation as an...

Important FDA Update Regarding Iron Infusions

There's been a change to the safety label for Injectafer®, an iron infusion often used to treat iron deficiency. The FDA now includes HHT as...

Volunteers Needed! Join Cure HHT on Capitol Hill

We are calling upon volunteers to Join us in Washington, DC, for HHT Hill Day and be the voice that drives change! Your presence can...

HHT Resources

Cure HHT is happy to provide a wide array of resources for patients, families, physicians and researchers. Be sure to check out our extensive resource library that houses fact sheets, brochures, publications, and all of our educational webinars.

Resource Library

Entering the Therapeutics Age: A New Era for HHT Treatment (Recorded)

2490100_SclerotherapyWebinarGraphic-Due10.31-2_102924

A New Option for Chronic Nosebleeds: Is Sclerotherapy Right for You? (Recorded)

United States Map of Nasal Sclerotherapy Providers

Stopping the Flow: A Comprehensive Guide to HHT Nosebleed Management (Recorded)

Mi CHECKLIST Sobre: HHT Cuidados

Mi CHECKLIST Sobre HHT Cuidados: Diagnóstico

Mi CHECKLIST Sobre HHT Cuidados: Mi Hijo

Genetics Trifold - Patient Spanish (graphic) RL

El Papel de la Genética en HHT (para pacientes)

Salud, Embarazo y HHT en las Mujeres

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HHT Treatment Centers

With an entire team of dedicated specialists to coordinate care, the HHT Treatment Centers of Excellence are the best place to access expert HHT care.

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Webinars

See what webinars we have coming up so you can watch them LIVE and get your questions answered in real time! You can also view our past webinars, with topics including (but not limited to!) insurance, AVMs, research, genetics, and children with HHT.

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