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Cure HHT Announcements

2022 Newsletters - Graphic promo

2022 Newsletters now available online!

Scan the pages of our printed 2022 newsletters (spring, summer and fall) as a pdf...
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14th HHT International Scientific Conference

On behalf of the Organizing Committee, we would like to invite you to join us...
Become a tissue donor_web post

Become a Tissue Donor

Duke University, through a separate BVMC project, is collecting vascular malformations (VMs) associated with HHT...
Marie Mahoney & Daughter

TDC Leaps for a Cure

TDC Leaps for a Cure - 2nd annual walk to cure HHT. The TDC dance...
RGP-Logo PNG

No-Cost Genetic Testing for HHT & Other Rare Diseases

The Rare Genomes Project is a patient-driven research project through the Broad Institute that performs...
UF CoE

UF Health named HHT Center of Excellence

Cure HHT is excited to announce that UF Health has been named the first HHT...
Let the World Hear Us - Social Share

June Awareness Month

HHT Awareness Month is here, and we are expanding our reach on a world-wide level...
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HHT Global Awareness Day

HHT Global Awareness Day (June 23rd) Get loud and #LetTheWorldHearUs In recognition of awareness day,...
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Strides for Strength

Join members of the HHT community around the world for our 3rd annual global virtual walk for a...
PH & HHT - Chakinala

PH & HHT – Signs, Symptoms
& Disease Management (Recorded)

PH and HHT: Signs, Symptoms & Disease Management Join PHA and Cure HHT for the...
Federal Funding

Federal Funding Secured for U.S. Centers of Excellence

A message from Cure HHT Executive Director, Marianne Clancy It is with tearful joyfulness that...
Frontlines - March 2022_cvr_web

Cure HHT Scientific Newsletter

Twice a year, Cure HHT collaborates with its global research and medical advisory board to...
CHRN 2022

CHRN: Creating a Roadmap for the Future

A Message from Marianne Clancy, Cure HHT Executive Director Transformational. That’s the word that keeps...
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