2022 Newsletters now available online!
Scan the pages of our printed 2022 newsletters (spring, summer and fall) as a pdf...
14th HHT International Scientific Conference
On behalf of the Organizing Committee, we would like to invite you to join us...
Become a Tissue Donor
Duke University, through a separate BVMC project, is collecting vascular malformations (VMs) associated with HHT...
No-Cost Genetic Testing for HHT & Other Rare Diseases
The Rare Genomes Project is a patient-driven research project through the Broad Institute that performs...
UF Health named HHT Center of Excellence
Cure HHT is excited to announce that UF Health has been named the first HHT...
June Awareness Month
HHT Awareness Month is here, and we are expanding our reach on a world-wide level...
HHT Global Awareness Day
HHT Global Awareness Day (June 23rd) Get loud and #LetTheWorldHearUs In recognition of awareness day,...
Strides for Strength
Join members of the HHT community around the world for our 3rd annual global virtual walk for a...
PH & HHT – Signs, Symptoms
& Disease Management (Recorded)
PH and HHT: Signs, Symptoms & Disease Management Join PHA and Cure HHT for the...
Federal Funding Secured for U.S. Centers of Excellence
A message from Cure HHT Executive Director, Marianne Clancy It is with tearful joyfulness that...