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2022 Newsletters now available online!
Scan the pages of our printed 2022 newsletters (spring, summer and fall) as a pdf...
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14th HHT International Scientific Conference
On behalf of the Organizing Committee, we would like to invite you to join us...
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Become a Tissue Donor
Duke University, through a separate BVMC project, is collecting vascular malformations (VMs) associated with HHT...
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No-Cost Genetic Testing for HHT & Other Rare Diseases
The Rare Genomes Project is a patient-driven research project through the Broad Institute that performs...
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UF Health named HHT Center of Excellence
Cure HHT is excited to announce that UF Health has been named the first HHT...
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June Awareness Month
HHT Awareness Month is here, and we are expanding our reach on a world-wide level...
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HHT Global Awareness Day
HHT Global Awareness Day (June 23rd) Get loud and #LetTheWorldHearUs In recognition of awareness day,...
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Strides for Strength
Join members of the HHT community around the world for our 3rd annual global virtual walk for a...
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PH & HHT – Signs, Symptoms
& Disease Management (Recorded)
PH and HHT: Signs, Symptoms & Disease Management Join PHA and Cure HHT for the...
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Federal Funding Secured for U.S. Centers of Excellence
A message from Cure HHT Executive Director, Marianne Clancy It is with tearful joyfulness that...