News & Resources

Since Cure HHT was established 25 years ago, we have been dedicated to providing answers to every question we can about HHT for patients, caregivers, doctors and researchers. Cure HHT remains the primary source for the most recent and reliable information about Hereditary Hemorrhagic Telangiectasia.

Latest News

Vaderis Therapeutics Announces Series B Financing and Initiation of the Global Phase 3 HEROIC Study

Cure HHT is thrilled to share this important milestone from Vaderis Therapeutics: the initiation of the global Phase 3 HEROIC study evaluating engasertib, an investigational...

Atavistik Bio Partners with Cure HHT Clinical Trial Network to Advance Development of ATV-1601 for HHT

Cure HHT is proud to partner with Atavistik Bio as it advances ATV-1601, an investigational oral therapy for people with moderate to severe HHT. With...

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Diagonal Therapeutics Announces First Patient Dosed In Phase 1/2 Diamond Clinical Trial Of Diag723 For HHT

Cure HHT is thrilled to share that the first patient has been dosed in Diagonal Therapeutics’ Phase 1/2 DIAMOND clinical trial evaluating DIAG723 for hereditary...

HHT Resources

Cure HHT is happy to provide a wide array of resources for patients, families, physicians and researchers. Be sure to check out our extensive resource library that houses fact sheets, brochures, publications, and all of our educational webinars.

Resource Library

State of HHT: An Update from Cure HHT’s CEO

Town Hall: Cure HHT Centers of Excellence Program Updates

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REST for Caregivers

Women’s Health & HHT: Across the Lifespan

Brain AVMS – Recent Advances in Imaging and Management

Discovering the HHT Genes: A Fireside Chat with Douglas Marchuk (Recording)

Knowledge is Power: The 5 Biggest Changes in HHT Care (Recording)

Comprehensive Guide to Managing Your Nosebleeds (Recording)

NIH Undiagnosed Diseases Program (UDP)

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HHT Treatment Centers

With an entire team of dedicated specialists to coordinate care, the HHT Treatment Centers of Excellence are the best place to access expert HHT care.

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Webinars

See what webinars we have coming up so you can watch them LIVE and get your questions answered in real time! You can also view our past webinars, with topics including (but not limited to!) insurance, AVMs, research, genetics, and children with HHT.

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