International HHT Guidelines: Anemia (Recorded)
Dr. Raj Kasthuri, Director, UNC Chapel Hill HHT Center of Excellence and Dr. Hanny Al-Samkari, Associate Director, Massachusetts General Hospital HHT Center of…
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International HHT Guidelines – Overview (Recorded)
Join Dr. Marie Faughnan, Director, Toronto HHT Centre of Excellence as she provides an overview of the newly updated International HHT Guidelines and how they a…
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NIH & Genetic Alliance – Coronavirus Vaccines (Recorded)
“Francis Collins, Director of the National Institutes of Health, shares with us why it is critical that individuals living with chronic diseases and conditions…
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COVID Vaccine Infographic
Review information related to COVID Vaccines for People with HHT including vaccine comparison chart, common myths, and special considerations for those with HHT…
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COVID-19 Official Updates Page
Cure HHT Official Health Updates page related to COVID-19, including official updates and statements, as well as links and other resources.
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HHT and COVID-19: Basics and What We Know in HHT
Dr. Justin McWilliams’ presentation slides related to HHT and COVID-19 from the 2021 Virtual Meet-Up, HHT and COVID: 1 Year Later. Dr. McWilliams is an Interven…
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HHT and COVID-19: Vaccines
Dr. Marie Faughnan’s presentation slides related to HHT and COVID-19 vaccinations, from the 2021 Virtual Meet-Up, HHT and COVID: 1 Year Later. Dr. Faughnan is a…
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HHT and COVID-19: Clotting and Anemia
Dr. Raj Kasthuri’s presentation slides related to HHT, COVID-19 and clotting and anemia, for the 2021 Virtual Meet-Up, HHT and COVID: 1 Year Later. Dr. Kasthuri…
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WEBINAR: Nociones básicas y generales sobre HHT (en español) (Recorded)
Cure HHT se enorgullece de presentar el primer seminario web en ESPAÑOL. El Dr. Marcelo Serra, especialista en Medicina Interna y Director de la Unidad de HHT d…
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Virtual Meet-Up: HHT & COVID – 1 Year Later (Recorded)
A rare opportunity to receive factual information surrounding COVID-19 and HHT from leading HHT experts who have been on the frontlines since the very beginning…
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Brain (Cerebral) Vascular Malformations & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
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Nosebleed (Epistaxis) & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
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Gastrointestinal (GI) Bleeding & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
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Imaging & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
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Liver Vascular Malformations & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
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Anemia, Iron Deficiency & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
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Diagnosis of HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
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Lung (Pulmonary) Arteriovenous Malformations & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
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Screening for pulmonary and brain vascular malformations is the North American standard of care for patients with hereditary hemorrhagic telangiectasia (HHT): A survey of HHT Centers of Excellence
Vascular Medicine. Authors: Alexandra Kilian, Marianne S. Clancy, Scott Olitsky, James R. Gossage and Marie E. Faughnan. This article is available for public us…
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Children & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
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Pregnancy & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
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Patient Symptom & Care Checklists
Download and distribute “My HHT Care Checklists” to patients to complete and return to you, including: HHT Care, HHT Diagnosis, Anemia, Brain VMs, Pediatric, Te…
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More Than a Nosebleed: HHT
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic condition affecting up to 1.4 million people worldwide. HHT is treatable, but no cure is yet available….
MoreEfficacy of Timolol in a Novel Intranasal Thermosensitive Gel for HHT–Associated Epistaxis: A Randomized Clinical Trial
JAMA Otolaryngology Head & Neck Surgery. Authors: Andrew M. Peterson, MSCI, Jake J. Lee, MD, MSCI, DorinaKallogjeri, MD, MPH, et al. This article can be pur…
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My Teen Years HHT Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
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My HHT Nosebleed Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
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My HHT Liver VM Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
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HHT International Clinical Guidelines (2020)
Published by the Annals of Internal Medicine in 2020, the “Second International Guidelines for the Diagnosis and Management of HHT” is a comprehensive document…
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My HHT GI Bleeding Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
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My HHT Diagnosis Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
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