Endoglin Interacts with VEGFR2 to Promote Angiogenesis

The FASEB Journal. Authors: Hongyu Tian, Jennifer J. Huang, Christelle Golzio, Xia Gao, Melissa Hector-Greene, Nicholas Katsanis, and Gerard C. Blobe. This arti…

HHT: Diagnosis and Management from the Hematologist’s Perspective

This review discusses the biology of HHT, management issues that face the practising hematologist, and considerations of future directions in HHT treatment. The…

HHT: Diagnosis and Management from the Hematologist’s Perspective

Haematologica. Authors: Athena Kritharis, Hanny Al-Samkari, and David J Kuter. This article is available for public use and does not require purchase. Click to…

Genetics: Unraveling Your DNA (recorded)

Jaime Jessen, BSc, MSc, CGC, Certified Genetic Counselor and Medical Science Liaison at Impact Genetics and LabCorp, provides an informative presentation on the…

HHT Genetic Counseling Services

Your doctor may refer you to a genetic counselor to discuss your risk for HHT and your genetic testing options. The role of a genetic counselor is to help you b…

Genetic Testing and HHT

HHT Overview and Screening Guidelines (recorded)

Dr. Mollie Meek, Director at the University of Arkansas Medical Sciences HHT Center of Excellence, provides an introduction to the basic clinical features of HH…

Applicability of the Curacao Criteria for the Diagnosis of HHT in the Pediatric Population

The Journal of Pediatrics. Authors: Kristy S. Pahl, Arkopal Choudhury, Katie Wusik, Adrienne Hammill, Andrew White, Katharine Henderson, Jeffrey Pollak, and Raj…

Vitamin D levels are Associated with Epistaxis Severity and Bleeding Duration in Hereditary Hemorrhagic Telangiectasia

A retrospective chart review of 198 patients was performed to explore the relationship between vitamin D levels and the ESS in order to explore the association…

Vitamin D levels are Associated with Epistaxis Severity and Bleeding Duration in Hereditary Hemorrhagic Telangiectasia

Biomarkers in Medicine. Authors: Lauren Marissa Weber, Jamie McDonald and Kevin Whitehead This article is available for public use and does not require purchase…

Making the Connection Between Legislative Advocacy and Federal Funding for HHT (recorded)

Cure HHT Legislative Advisor Mark Vieth takes us for a behind-the-scene look at how Cure HHT can impact federal research funding and awareness of this disease….

HHT Frontlines Scientific Newsletter (2018)

February 2018. Cure HHT’s biannual newsletter that centralizes and summarizes select and important publications about HHT for patients, clinicians, and scientis…

Avastin Indication Table

Table detailing Criteria for IV Bevacizumab (Avastin) Use for Epistaxis and GI Bleeding.   Resource taken from: Iyer, V. N., Apala, D. R., Pannu, B. S., Ko…

The Current Role of Bevacizumab in the Treatment of Hereditary Hemorrhagic Telangiectasia Related Bleeding

Mayo Clinic. Author: James R. Gossage, MD This article is available for public use and does not require purchase. Click to view the full article.

Intravenous Bevacizumab for Refractory Hereditary Hemorrhagic Telangiectasia Related Epistaxis and Gastrointestinal Bleeding

Mayo Clinic. Authors: Vivek N. Iyer, MD, MPH; Dinesh R. Apala, MBBS; Bibek S. Pannu, MBBS; Aditya Kotecha, MBBS; Waleed Brinjikji, MD; Michael D. Leise, MD; Pat…

HHT is More than a Bleeding Nose – What an ENT Doctor Needs to Know About HHT and Why.

Professor Anette Kjeldsen, Member of the VASCERN HHT Working Group and the HHT Center of Excellence at Odense University Hospital, Denmark,  provides and overvi…

An Overview of Hereditary Hemorrhagic Telangiectasia (HHT)

This video is presented by Professor Claire L. Shovlin, Chair VASCERN HHT Working Group  and Director of the HHT Center of Excellence at Hammersmith Hospital –…

How to Guide: Fundraiser for HHT

How to Guide: Birthday Donations for HHT

HHT Scientific Conference Summaries (recorded)

  Drs. Hughes, Faughnan and Andrejecsk provide a first hand synopsis of the HHT science presented in Dubrovnik, Croatia where over 200 voices were heard fr…

Pulmonary Arteriovenous Malformations (PAVMs) and Hereditary Hemorrhagic Telangiectasia (HHT)

Dr. Marie Faughnan, Cure HHT Scientific Research Director and Director of the HHT Center of Excellence at St. Michael’s Hospital / University of Toronto, provid…

Surgical Treatment vs Nonsurgical Treatment for Brain Arteriovenous Malformations in Patients with HHT: A Retrospective Multicenter Consortium Study

Neurosurgery. Authors: Meybodi, AT, Kim, H., Nelson, J., Hetts, SW., Krings, T, terBrugge, KG, Faughnan, ME, Lawton, MT, and the Brain Vascular Malformation Con…

Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia

By Sara Palmer, PhD In this recently published book, psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health condition…

Diagnosis and Procedure Codes for HHT

Diagnosis and procedure codes are important for insurance processing, but they also help determine a more accurate prevalence of the disease. Make sure your med…

Surgeon General’s My Family Health Portrait

Completing your family tree is a critical first step in identifying family members who may have inherited HHT. Provided by the Surgeon General, “My Family Healt…

My Family Has HHT Pamphlet

Looking for a simple explanation of HHT to share with your children and those who care for them everyday? This pamphlet is to assist children who may be uncerta…

Abstracts – 12th HHT International Scientific Conference (2017)

Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.

Executive Summary – 12th HHT International Scientific Conference (2017)

Angiogenesis. Authors: Jillian W. Andrejecsk, Anna E. Hosman, Luisa M. Botella, Claire L. Shovlin, Helen M. Arthur, Sophie Dupuis-Girod, Elisabetta Buscarini, C…

Learn More About HHT Brochure

Everything you need to know about HHT all in one place. You can gain a comprehensive understanding of the disease from diagnosis, screening, genetic testing and…

Hereditary Haemorrhagic Telangiectasia: Novel cardiopulmonary insights

Author: Veronique M.M. Vorselaars. This article is available for public use and does not require purchase. Click to view the full article.