International HHT Guidelines: Liver Vascular Malformations (Recorded)
Dr. Kevin Whitehead, Co-Director, University of Utah HHT Center of Excellence and Dr. Josanna Rodriguez-Lopez, Director, Massachusetts General Hospital HHT Cent…
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International HHT Guidelines: Pulmonary AVMs (Recorded)
Dr. Miles Conrad, Co-Director, University of California San Francisco HHT Center of Excellence and Dr. Mollie Meek, Director, University of Arkansas for Medical…
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HHT Medical Emergency Wallet Card
In the event of an emergency, this printable compact medical card is wallet-sized and can speak for an HHT patient when they can’t. The card features a descript…
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International HHT Guidelines: Pregnancy and Women’s Issues (Recorded)
Dr. Andrea Lausman, Maternal Fetal Medicine Specialist, and Dr. Filomena Meffe, Chief, Department of Obstetrics and Gynecology, at the Toronto HHT Centre of Exc…
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Nuts and Bolts of A Clinical Trial – the PATH-HHT Study (Recorded)
Research is the key to the future health and quality of life for HHT patients. “Diseases can only be cured when scientists understand them. This understanding,…
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International HHT Guidelines: Pediatrics (Recorded)
Dr. Andrew White, Co-Director, Washington University / St. Louis Children’s Hospital HHT Center of Excellence and Dr. Adrienne Hammill, Director, Cincinnati Chi…
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Meta | Science Discovery Platform
Meta is a free research discovery tool from the Chan Zuckerberg Initiative, providing a faster way to understand and explore science through personalized feeds….
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Las Guías Internacionales de HHT: Anemia (Recorded)
El Dr. Marcelo Serra, Internista y Director de la Unidad de HHT, Hospital Italiano de Buenos Aires y la Dra. Yesica Lijdens, Otorrinolaringóloga del HHT Hospita…
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Cure HHT Actualizaciones Oficiales de Salud: Coronavirus Disease (CV)
Página de Actualizaciones de salud oficiales de Cure HHT relacionada con COVID-19, que incluye actualizaciones y declaraciones oficiales, así como enlaces y otr…
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Mi Checklist Sobre Cuidados de HHT: Nasales
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
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Mi CHECKLIST Sobre Cuidados de HHT: Anemia
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
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International HHT Guidelines: GI Bleeding Management
Dr. Murali Chakinala, Co-Director, Washington University HHT Center of Excellence and Dr. Vivek Iyer, Director, Mayo Clinic HHT Center of Excellence as they dis…
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International HHT Guidelines: Anemia (Recorded)
Dr. Raj Kasthuri, Director, UNC Chapel Hill HHT Center of Excellence and Dr. Hanny Al-Samkari, Associate Director, Massachusetts General Hospital HHT Center of…
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International HHT Guidelines – Overview (Recorded)
Join Dr. Marie Faughnan, Director, Toronto HHT Centre of Excellence as she provides an overview of the newly updated International HHT Guidelines and how they a…
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NIH & Genetic Alliance – Coronavirus Vaccines (Recorded)
“Francis Collins, Director of the National Institutes of Health, shares with us why it is critical that individuals living with chronic diseases and conditions…
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COVID Vaccine Infographic
Review information related to COVID Vaccines for People with HHT including vaccine comparison chart, common myths, and special considerations for those with HHT…
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COVID-19 Official Updates Page
Cure HHT Official Health Updates page related to COVID-19, including official updates and statements, as well as links and other resources.
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HHT and COVID-19: Basics and What We Know in HHT
Dr. Justin McWilliams’ presentation slides related to HHT and COVID-19 from the 2021 Virtual Meet-Up, HHT and COVID: 1 Year Later. Dr. McWilliams is an Interven…
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HHT and COVID-19: Vaccines
Dr. Marie Faughnan’s presentation slides related to HHT and COVID-19 vaccinations, from the 2021 Virtual Meet-Up, HHT and COVID: 1 Year Later. Dr. Faughnan is a…
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HHT and COVID-19: Clotting and Anemia
Dr. Raj Kasthuri’s presentation slides related to HHT, COVID-19 and clotting and anemia, for the 2021 Virtual Meet-Up, HHT and COVID: 1 Year Later. Dr. Kasthuri…
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WEBINAR: Nociones básicas y generales sobre HHT (en español) (Recorded)
Cure HHT se enorgullece de presentar el primer seminario web en ESPAÑOL. El Dr. Marcelo Serra, especialista en Medicina Interna y Director de la Unidad de HHT d…
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Virtual Meet-Up: HHT & COVID – 1 Year Later (Recorded)
A rare opportunity to receive factual information surrounding COVID-19 and HHT from leading HHT experts who have been on the frontlines since the very beginning…
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Brain (Cerebral) Vascular Malformations & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
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Nosebleed (Epistaxis) & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
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Gastrointestinal (GI) Bleeding & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
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Imaging & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
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Liver Vascular Malformations & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
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Anemia, Iron Deficiency & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
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Diagnosis of HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
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Lung (Pulmonary) Arteriovenous Malformations & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
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