Alder Hey Children’s Hospital Achieves Cure HHT Center of Excellence Designation
Newly recognized international treatment center expands access to expert, coordinated care for people living with HHT MONKTON, MD—Cure HHT is proud to announce that Alder Hey Children’s Hospital in Liverpool,…
Cure HHT Announces Historic Federal Research Designation for Hereditary Hemorrhagic Telangiectasia
New PRMRP designation creates a dedicated pathway for HHT-focused research through the Department of Defense’s Congressionally Directed Medical Research Programs MONKTON, MD. — May 19, 2026 — Cure HHT is…
State of HHT: An Update from Cure HHT’s CEO
Upcoming Event: State of HHT: An Update from Cure HHT’s CEO Tuesday, June 23 | 6:00-7:00pm ET Join Cure HHT’s CEO for a comprehensive update on the state of…
University Hospitals of Leuven Achieves Cure HHT Center of Excellence Designation
Newly recognized international treatment center expands access to expert, coordinated care for people living with HHT MONKTON, MD—Cure HHT is proud to announce that University Hospitals of Leuven has been…
Town Hall: Cure HHT Centers of Excellence Program Updates
Upcoming Webinar: Town Hall: Cure HHT Center of Excellence Program Updates Tuesday, June 16 | 1:00-2:00pm ET Cure HHT is committed to improving care, supporting providers, and helping ensure…
Facebook Live: AMA with Dr. Miles Conrad, UCSF
Upcoming Event: Facebook Live: AMA with Dr. Miles Conrad, UCSF Tuesday, June 2 | 7:00-8:00pm ET This is your opportunity to ask questions about HHT symptoms, diagnosis, treatment options,…
HHT is Rare As One!
Cure HHT has been selected as 1 of only 30 organizations out of 287 that submitted letters of interest, to…
Cleveland – “Woman Undergoes Brain Surgery to Remove Deadly AVM, Caused by Rare Genetic Condition”
Cleveland Clinic – “Every time Lindsay Vos got a throbbing headache, or felt weakness on the left side of…
HHT in the News – Wisconsin
KENOSHA — For most of his life, Mark Schnuck has had nosebleeds. Some have been minor, others severe, but…
Rainbow Rehab’s Rainbow Visions Magazine: Coming Full Circle
Much of HHT education comes from the deeply personal stories of those who are living with the disorder. This…
Washington Post Feature: Zina Martinez Story
The Washington Post | November 17, 2018 Check out the Washington Post Health & Science section’s featured article about…
Chair’s Corner: UNC Department of Medicine Podcast with Dr. Raj Kasthuri about HHT
Podcast Series | The Department of Medicine at the University of North Carolina Check out the transcript of a…
Living with HHT: Review in Journal of Radiology Nursing
Book Review | Journal of Radiology Nursing June 2018: Volume 37, Issue 2, Page 137. Read the article from…