Screening for pulmonary and brain vascular malformations is the North American standard of care for patients with hereditary hemorrhagic telangiectasia (HHT): A survey of HHT Centers of Excellence
Vascular Medicine. Authors: Alexandra Kilian, Marianne S. Clancy, Scott Olitsky, James R. Gossage and Marie E. Faughnan. This article is available for public us…
More
Children & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
More
Women’s Health, Pregnancy & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
More
Patient Symptom & Care Checklists
Download and distribute “My HHT Care Checklists” to patients to complete and return to you, including: HHT Care, HHT Diagnosis, Anemia, Brain VMs, Pediatric, Te…
More
More Than a Nosebleed: HHT
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic condition affecting up to 1.4 million people worldwide. HHT is treatable, but no cure is yet available….
MoreEfficacy of Timolol in a Novel Intranasal Thermosensitive Gel for HHT–Associated Epistaxis: A Randomized Clinical Trial
JAMA Otolaryngology Head & Neck Surgery. Authors: Andrew M. Peterson, MSCI, Jake J. Lee, MD, MSCI, DorinaKallogjeri, MD, MPH, et al. This article can be pur…
More
My Teen Years HHT Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
More
My HHT Nosebleed Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
More
My HHT Liver VM Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
More
HHT International Clinical Guidelines (2020)
Published by the Annals of Internal Medicine in 2020, the “Second International Guidelines for the Diagnosis and Management of HHT” is a comprehensive document…
More
My HHT GI Bleeding Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
More
My HHT Diagnosis Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
More
My HHT Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
More
My HHT Brain VM Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
More
My HHT Pulmonary AVM Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
More
My Child’s HHT Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
More
My HHT Pregnancy & Delivery Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
More
My HHT Anemia and Iron Deficiency Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
More
Ask The Doctor: Tackling Anemia and Iron Deficiency (Recorded)
Feeling tired? Weak? Short of Breath? These symptoms could be related to HHT induced anemia and iron deficiency. With anemia affecting 50% of people diagnosed w…
More
Virtual Meet-up: Ask the Doctor – Nosebleeds 101 (Recorded)
Watch our “Ask the Doctor” series with Dr. Scott Olitsky, Cure HHT Chief Medical Officer, and HHT patient, Chelsea McBride as they discuss EVERYTHING nosebleed…
More
Ask the Doctor: HHT and Pulmonary Hypertension (recorded)
Dr. Scott Olitsky, Cure HHT Chief Medical Officer, and Michael Knaapen, Director, Patient and Caregiver Programs at the Pulmonary Hypertension Association, disc…
More
PH and HHT Patient Brochure
Did you know that if you have HHT you are at risk for Pulmonary Hypertension? The Pulmonary Hypertension Association developed a brochure for PH and HHT patient…
More
Physician Fact Sheet
A compact fact sheet that can be hung on your refrigerator or carried with you to a new physician appointment, and shared in the event of an unexpected trip to…
More
Managing Stress and Emotional Hurdles in HHT (recorded)
Dr. Abbey Hughes, board-certified rehabilitation psychologist and assistant professor in the Department of Physical Medicine and Rehabilitation at the Johns Hop…
MoreCerebrovascular Malformations in a Pediatric Hereditary Hemorrhagic Telangiectasia Cohort
Pediatric Neurology. Authors: Lauren A. Beslow, MD, MSCE; Jake Breimann, BA, Daniel J. Licht, MD; Jake Waldman; Samantha Fallacaro; Reed E. Pyeritz, MD, PhD; El…
More
Navigating the NEW Resource Library (recorded)
On May 20, 2020, Nicole Schaefer, Director of Medical and Scientific Programs and Phyllis Loveland, Operations and Communications Manager took a look into all t…
MoreRose Geranium Oil Compound
This article is available for public use and does not require purchase. Click to view the full article.
MoreRare Coagulation Disorders Resource Room – HHT
Rare Bleeding Disorders – HHT Overview.
MorePubMed – US National Library of Medicine National, NIH
PubMed – NIH National Library of Medicine: National Center for Biotechnology Information and comprising more than 30 million citations for biomedical literature…
MoreMedlinePlus – US National Library of Medicine National, NIH
MedlinePlus – U.S. National Library of Medicine: an online health information resource for patients and their families and friends.
More