How to Be an HHT Changemaker Part 2: Educate Your Local Provider (Recorded)
YOU asked us to educate the medical community on HHT. Learn more about our new HHT Continuing Education Credit Online Platform in Part 2 of our “How to Be an HH…
More
How to Be an HHT Changemaker Part 1: Drive Research (Recorded)
Participating in research is the ultimate way to be an HHT changemaker. We have two exciting new projects to share with you, HHT Connect and the Cure HHT BioBan…
More
NEW Criteria! Groundbreaking Trial for HHT: Learn About Pazopanib (Recorded)
Your questions answered about our newest clinical trial with NEW expanded criteria! Join Cassi Friday, PhD and Jim Gossage, MD as they explain who is now eligib…
More
Cure HHT Canada
Cure HHT Canada is a registered, tax-deductible charitable organization in Canada. The establishment of Cure HHT Canada marks a concentrated effort to expand a…
More
Caring for HHT Through the Generations (Recorded)
Drs. Adrienne Hammill, Center Director at Cincinnati Children’s Hospital and Kevin Whitehead, Center Director at University of Utah. Dr. Hammill guides you thro…
More
Pazopanib: A Groundbreaking Trial for HHT (Recording)
Get your questions answered about our newest clinical trial! Join Cassi Friday, PhD and Jim Gossage, MD as they explain who is eligible, what Pazopanib is and h…
MoreGuías clínicas internacionales HHT (2020)
Publicada por Annals of Internal Medicine en 2020, las “Segundas pautas internacionales para el diagnóstico y tratamiento de la HHT” son un documento completo p…
MoreListas de verificación de atención y síntomas del paciente
Descargue y distribuya “Mis listas de verificación de atención HHT” a los pacientes para que las completen y se las devuelvan, incluidas: atención HHT, diagnóst…
More
Mi CHECKLIST Sobre HHT Cuidados: Embarazo y Parto
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
More
Mi CHECKLIST Sobre HHT Cuidados: Adolescencia
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
More
Mi CHECKLIST Sobre HHT Cuidados: Malformaciones Arteriovenosas Pulmonares (MAVP)
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
More
Mi CHECKLIST Sobre HHT Cuidados: Malformaciones Vasculares Hepáticas (MVH)
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
More
Mi CHECKLIST Sobre HHT Cuidados: Sangrado Gastrointestinal
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
More
Mi Checklist Sobre HHT Cuidados: Malformaciones Vasculares Cerebrales (MVC)
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
More
The Role of Genetics in HHT (for patients)
For people who suspect that they might have HHT, this brochure provides an overview of the signs, symptoms, and genetics of HHT and outlines the importance of g…
More
The Role of Genetics in HHT (for providers)
This brochure gives healthcare providers an overview of the signs, symptoms, and genetics of HHT and outlines the important role that genetic testing plays in t…
MoreAbstracts – 14th HHT International Scientific Conference (2022)
Angiogenesis. This article is open access and free for a certain period of time; otherwise, it is available for purchase directly from the publisher. Click to v…
MoreExecutive Summary – 14th HHT International Scientific Conference (2022)
Angiogenesis. This article is open access and free for a certain period of time; otherwise it is available for purchase directly from the publisher. Click to vi…
More
HHT Family Ambassadors & Communicating with Family
FB Live Event – Join Sara Palmer, PhD, author of Living with HHT, and Riley Blevins of Cure HHT as they navigate discussing HHT with family members and the impo…
More
Angel Flight NE
Angel Flight NE is a non-profit organization providing FREE medical air transportation for individuals with limited financial resources, including those sufferi…
More
Uncovering Your Roots: Decoding Genetic Testing
Discover the power of genetic testing as we uncover the roots of HHT! Join us for an enlightening online education opportunity with Theodore Drivas, MD, PhD, Un…
More
Iron and HHT: Boosting Your Health & Energy with Iron-Rich Foods
Calling all foodies! Grab your apron and head to the kitchen to join Registered Dietitian Nutritionist Kat Benson for our most sizzling online education opportu…
More
Dietary Iron & HHT
Iron deficiency is a common and important manifestation of HHT. Lack of iron makes it harder to produce red blood cells (RBCs), has symptoms similar to anemia,…
More
Research Roundtable: An Inside Look at Exciting Clinical Trials
Delve into the exciting clinical research projects underway in HHT! Cassi Friday, PhD will provide an overview of what goes into a clinical trial. Dr. Marie Fau…
More
The Connection Between HHT and PH
Learn more about the connection between HHT and PH, disease management, signs and symptoms and more during this recorded Facebook Live event with Dr. Ali Ataya…
More
Nosebleed Management – Nurse Cards
This card contains helpful tips for nosebleed management in a format that is ideal for providers who may not be familiar with the care required for HHT-related…
More
Back to School (tips for caregivers of children with HHT)
Facebook Live event featuring Cure HHT Chief Medical Officer, Scott Olitsky, MD, and school nurse, Leslie A. Perry, RN, MS as children gear up and get ready to…
More
PH and HHT: Signs, Symptoms and Disease Management (Recorded)
PHA and Cure HHT – Murali M. Chakinala, M.D. discusses the importance of recognizing the signs and symptoms of Pulmonary Hypertension (PH) and Hereditary Hemorr…
More
Development and performance of a hereditary hemorrhagic telangiectasia-specific quality-of-life instrument
Blood Advances. Authors: Raj S Kasthuri, Shruti Chaturvedi, Sonia Thomas, Nathan Vandergrift, Carla Bann, Nicole Schaefer, Marianne S Clancy, Reed Pyeritz, and…
More