Rainbow Rehab’s Rainbow Visions Magazine: Coming Full Circle
Much of HHT education comes from the deeply personal stories of those who are living with the disorder. This incredible article by recreational therapist Lindsay Vos in Rainbow Rehab’s Rainbow Visions magazine is an intimate and honest portrayal of coming to terms with HHT. “Coming Full Circle” follows Lindsay’s journey through denial, HHT diagnosis, removal…
Washington Post Feature: Zina Martinez Story
The Washington Post | November 17, 2018 Check out the Washington Post Health & Science section’s featured article about a HHT diagnosis, written by Sandra G. Boodman. This harrowing tale is about a mother, her children, and the race to be properly diagnosed with HHT. Read full article > Cure HHT was instrumental in…
Chair’s Corner: UNC Department of Medicine Podcast with Dr. Raj Kasthuri about HHT
Podcast Series | The Department of Medicine at the University of North Carolina Check out the transcript of a podcast on June 27, 2018 and learn how Dr. Raj Kasthuri talks about Hereditary Hemorrhagic Telangiectasia, also known as HHT, with Dr. Ron Falk. Dr. Kasthuri describes the symptoms, how it can affect internal organs, and…
Living with HHT: Review in Journal of Radiology Nursing
Book Review | Journal of Radiology Nursing June 2018: Volume 37, Issue 2, Page 137. Read the article from the Journal of Radiology Nursing, written by Jeffrey Pollak, MD and Katharine Henderson, MS, reviewing the published book Sara Palmer, PhD titled Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia. Read Article | Purchase Book
Marianne Clancy Interview on Fox 45 News Baltimore
Fox 45 News Baltimore | June 18, 2018 Check out the news clip from the interview between Fox 45 News Baltimore and Cure HHT’s Executive Director, Marianne Clancy, as she talks about HHT and HHT Awareness Month. News Clip >
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