Raise Awareness and Take Action!

Important Resources to Raise Awareness About HHT

More Than a Nosebleed (Video)

Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic condition affecting up to 1.4 million people worldwide. HHT is treatable, but no cure is yet available. Watch this video to learn about HHT and what you can do to help.

Get the Facts

This Cure HHT Infographic provides the need-to-know information on rare diseases as a whole. Download and print this fact sheet to help us spread the word about rare diseases and how they affect our community.

June is HHT Awareness Month

Every June we celebrate HHT awareness and make great strides in getting the word out about HHT to the public.

Our global community joins together to share stories, facts and hope.

This June, we asked everyone to join us in taking steps to make great strides for HHT patients and families.

Others Ways Everyone Participated in HHT Awareness Month

#TakeStepsToCureHHT #HHTAwareness2018


Who Took Steps on Global HHT Awareness Day: 06.23.18

#TakeStepstoCureHHT Around the Web

Together, we will take steps to cure HHT.

Together, we will make great strides in making HHT visible.



Join a HHT Event

Our HHT community may be small, but we are mighty. There are a number of HHT events with a focus on raising awareness, educating the public and empowering all to act on behalf of this disease. 

Here are a few different events to get involved in: 

  • HHT Walks and Family Days 
  • HHT Fundraising Events 
  • HHT Baseball Days 
  • Blood Drives for HHT 
  • HHT Patient Conferences 

Want to learn more? Check out our upcoming events page

Share Your Story

Share your story with your family, your friends, your neighbors, your office, your school and your local news. When you share your story, you are joining thousands of others across the world to spread awareness about HHT.  

Check out how to Share Your Story to learn more and to get started. 

Fundraise for a Cure

Did you know that $1 donated to Cure HHT means $.93 goes towards HHT research, education programs and treatment options? 

Did you know that the majority of funding for Cure HHT comes from individuals? 

That is why we need YOU to join us in raising money for a cure. 

And when you fundraise for HHT, you are raising awareness about the disease.

Join us and Fundraise for a Cure

The more you talk about HHT, the more patients, doctors and scientists learn about HHT.

Spreading awareness leads to finding HHT in others, treating those who have it and ultimately,

securing a cure for all HHT patients across the world.