Raise Awareness and Take Action!
Global HHT Awareness Day: June 23, 2018
Every June our community from across all continents comes together for this cause.
On June 23, 2018 we are asking you to step up for a loved one who has HHT.
How? By counting your steps, rocking some red shoelaces and sharing why.
You may take steps because you want a day where HHT is not something you have to worry about.
You may take steps because of your mom, dad, sister, brother, uncle or aunt
who has this disease and is unable to step up themselves.
You may take steps because you want to see a cure for HHT in this lifetime.
Whatever the reason, we hope you will join us and the global HHT community on June 23, 2018.
Let's all take steps to Cure HHT!
June is HHT Awareness Month
Every June we celebrate HHT awareness and make great strides in getting the word out about HHT to the public.
Our global community joins together to share stories, facts and hope.
We want you to join us in taking steps to make great strides for HHT patients and families.
This month, be a part of HHT Awareness Month. Share facts and information with your family, friends and medical network, share your story, participate in an event or online fundraiser and count those steps! Your awareness efforts are vital for spreading awareness about this disease.
All the Ways You Participate in HHT Awareness Month
- Share our daily HHT facts! Check our Facebook and Twitter every day for a new fact to share with your own networks.
- Spread HHT awareness on Facebook! Change your profile picture and become a Facebook fundraiser to help us raise both awareness and funds for our HHT community.
- Educate your medical network about HHT! Download our Quick Facts about HHT as a resource to share with your physicians, nurses, dentists and other medical professionals.
- Talk about your own journey living with HHT by sharing your story!
- If you are based in the USA, join our 50 State Challenge!
Join Us Taking Steps and Wearing Red Shoelaces for HHT
More Than a Nosebleed
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic condition affecting up to 1.4 million people worldwide. HHT is treatable, but no cure is yet available. Watch this video to learn about HHT and what you can do to help.
#TakeStepstoCureHHT Around the Web
Together, we will take steps to cure HHT.
Together, we will make great strides in making HHT visible.
OTHER WAYS TO RAISE AWARENESS
Our HHT community may be small, but we are mighty. There are a number of HHT events with a focus on raising awareness, educating the public and empowering all to act on behalf of this disease.
Here are a few different events to get involved in:
- HHT Walks and Family Days
- HHT Fundraising Events
- HHT Baseball Days
- Blood Drives for HHT
- HHT Patient Conferences
Want to learn more? Check out our upcoming events page.
Share your story with your family, your friends, your neighbors, your office, your school and your local news. When you share your story, you are joining thousands of others across the world to spread awareness about HHT.
Check out how to Share Your Story to learn more and to get started.
Did you know that $1 donated to Cure HHT means $.93 goes towards HHT research, education programs and treatment options?
Did you know that the majority of funding for Cure HHT comes from individuals?
That is why we need YOU to join us in raising money for a cure.
And when you fundraise for HHT, you are raising awareness about the disease.
Join us and Fundraise for a Cure!
The more you talk about HHT, the more patients, doctors and scientists learn about HHT.
Spreading awareness leads to finding HHT in others, treating those who have it and ultimately,
securing a cure for all HHT patients across the world.