Fundraise for a Cure

You can change someone’s life by fundraising for HHT

Join us to improve the lives of those with HHT by raising funds for research, outreach and education. With your help, we can change the fate of those with HHT.

Right now, there is no cure for HHT.  We believe that finding a cure is possible in this lifetime. And we need your help.

Our goal is simple: 

We want people across every town, city, region and state in this country
to act for HHT by fundraising for this cause this year. When you fundraise for HHT through the 50 State Challenge, you also educate, advocate, raise awareness and raise the visibility of this disease. 

How can we do that? 

By joining the challenge this year, giving yourself a fundraising goal and working with others to reach that goal. 

Become a Cure HHT Champion

The Cure HHT Champion program is a great opportunity to raise money for Cure HHT while training for the athletic event of your choice.


This program is much more than just achieving a personal fitness goal and giving back to charity though. It is about raising awareness for a disease that is unknown and educating the public about signs and symptoms. By becoming a Cure HHT Champion, you are saving someone’s life because the more people who know about HHT can get diagnosed and proper treatment.


When you become a Cure HHT Champion, you receive the support from our community of runners, swimmers, cyclists and adventure-seekers! We will help you set up your own fundraising page, promote your event, assist with logistics and are able to offer advice from our fitness experts!

Email us at [email protected] to become a Champion today!

Create Your Own Fundraiser

If you are unsure about joining one of our planned events and challenges, but you still want to do something for HHT....

Create your own fundraiser!

Almost anything that you and your friends do can be turned into a fundraiser for HHT.

Email us at [email protected] to start your own fundraiser today!

Looking for inspiration to start your HHT fundraising?

Check out our past fundraisers below!