Provider Resources

Resources addressing anemia/iron deficiency including causes, symptoms, and treatment options.

Resources addressing HHT-related issues that affect the brain including cerebral AVMs, hemorrhage stroke, ischemic stroke, brain abscess, migraines and seizures. This section will include screening recommendations and treatment options.

Resources to guide physicians initiating screening and treatment in patients. Included are handouts and factsheets to provide to patients and families.

Resources related to COVID-19.

Drugs are approved in the U.S. by the Food and Drug Administration (FDA) for specific purposes to help guide medical practice.

Resources addressing the treatment of GI bleeding and the screening and treatment for patients with juvenile polyposis associated with the SMAD4 gene.

Resources regarding the HHT-associated genes and how to facilitate genetic testing and counseling for patients and families.

Resources addressing the treatment of HHT-related issues that affect the heart including heart failure and pulmonary hypertension.

Resources addressing the different screening and treatment needs in children.

Resources to guide physicians through common insurance issues including coverage, out-of-network considerations, authorizations, and disability.

A comprehensive document outlining screening, treatment and management as determined by an international consensus from HHT experts worldwide. These guidelines were published by the Journal of Medical Genetics in 2009 and are utilized by providers at the HHT Centers of Excellence.

Resources addressing the treatment of HHT-related issues that affect the liver including liver AVMs, liver failure, and liver transplantation.

Resources addressing HHT-related issues that affect the lungs including pulmonary AVMs, pulmonary hypertension and brain abscess caused by lung involvement. This section will include screening recommendations and treatment options.

Resources to guide physicians in the management of epistaxis.

Resources addressing HHT-related issues in women including pregnancy, menopause, and birth control.

Cure HHT’s biannual newsletter that, based on the importance of each study, centralizes and summarizes select publications about HHT for patients, clinicians, and scientists.

Resources addressing skin telangiectasias and treatment options.

Links to outside medical and government organizations that provide information useful for HHT providers.