Reflections from the Next Generation
A new generation is coming of age with a different kind of awareness — earlier, clearer, and supported by a community their parents never had. They are growing up not only with the vocabulary of HHT, but with the conviction that understanding this disease is the first step toward changing its future.
They carry their families’ history, yes — but they also carry a determination that is uniquely their own.
What is HHT
HHT affects more than 1.4 million people worldwide and is the 2nd most common genetic bleeding disorder in the U.S. But it is still often misdiagnosed and misunderstood.
What We’ve Accomplished
Since our inception in 1991, we’ve worked tirelessly to raise awareness, improve treatments, and increase patient access to life-saving care.
Impact by the numbers.
We drive science forward through government advocacy, seed grants, and other means. Turning your donations into millions of dollars dedicated to funding new treatments, technology, and drugs.
28 seed grants
Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.
HHT News You Can Use
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