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Development and performance of a hereditary hemorrhagic telangiectasia-specific quality-of-life instrument
Blood Advances. Authors: Raj S Kasthuri, Shruti Chaturvedi, Sonia Thomas, Nathan Vandergrift, Carla Bann, Nicole Schaefer, Marianne S Clancy, Reed Pyeritz, and Keith R McCrae. This article is available for…
Read MoreInsuranceWith – Travelling with a Medical Condition
…and tips throughout. You will find specific information on: travelling with medication, travelling with a disability that affects movement, and travelling with a medical condition that needs to be monitored….
Read MoreAngel Flight
Need transportation to an HHT Center of Excellence? Angel Flight may be able to help. Angel Flight is a non-profit charitable organization of pilots, volunteers, and friends. They will arrange…
Read MoreAir Care Alliance
Need transportation to an HHT Center of Excellence? Air Care Alliance may be able to help. The Air Care Alliance is a nationwide league of humanitarian flying organizations whose volunteer…
Read MoreGenetic Information Nondiscrimination Act (GINA)
…genetic discrimination in health insurance and employment. Genetic discrimination is the misuse of genetic information. This resource provides an introduction to GINA and its protections in health insurance and employment….
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