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June is HHT Awareness Month

For individuals and families affected by Hereditary Hemorrhagic Telangiectasia (HHT), awareness and support are vital. June is our opportunity to come together, share our experiences, and educate others about this often-underdiagnosed condition. Explore resources, connect with the community, and find out how you can help amplify the voices of those living with HHT.

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Kate is a teacher, an avid swimmer, and addicted to green tea lattes. She loves traveling, dogs, and dreams of having a family.

Kate lives with HHT.

Imagine living with a disease that has no FDA-approved treatment or cure, day-in and day-out.

Kate plans her paid time off around infusion dates and specialty care appointments, often a year in advance. She has to take a lunchtime break in her car to catch up on rest due to low iron fatigue. Kate has a surgery scheduled to treat some of her pulmonary AVMs, but she’s worried about planning for a family with other AVMs that are not yet treated.

And while Kate may not be real, experiences like hers are. Cure HHT works every day to ensure doctors, researchers, lawmakers, and the general public can see beyond and understand HHT is so much more than a nosebleed.

Read Kate's Story
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