Provider Resources Navigating an HHT diagnosis doesn’t have to be difficult. Our comprehensive resource library offers a breadth of information and resources sorted by topic area. Quick Topic Access Anemia/ Iron Deficiency Brain HHT Continuing Education Clinicians First Time Seeing a Patient with HHT Drug Therapy Gastrointestinal Genetics Heart HHT in children Insurance International Guidelines for Screening and Treatment Liver Lungs Nosebleeds or Epistaxis Pregnancy & Women’s Issues Skin Useful Links to Outside Organizations Advanced Search Resources addressing anemia/iron deficiency including causes, symptoms, and treatment options. Anemia/ Iron Deficiency Resources addressing HHT-related issues that affect the brain including cerebral AVMs, hemorrhage stroke, ischemic stroke, brain abscess, migraines and seizures. This section will include screening recommendations and treatment options. Brain Take FREE online CME courses to learn more about HHT and receive continuing education credits. HHT Continuing Education Resources to guide physicians initiating screening and treatment in patients. Included are handouts and factsheets to provide to patients and families. Clinicians First Time Seeing a Patient with HHT Resources related to COVID-19. COVID-19 Drugs are approved in the U.S. by the Food and Drug Administration (FDA) for specific purposes to help guide medical practice. Drug Therapy Resources addressing the treatment of GI bleeding and the screening and treatment for patients with juvenile polyposis associated with the SMAD4 gene. Gastrointestinal Resources regarding the HHT-associated genes and how to facilitate genetic testing and counseling for patients and families. Genetics Resources addressing the treatment of HHT-related issues that affect the heart including heart failure and pulmonary hypertension. Heart Resources addressing the different screening and treatment needs in children. HHT in children Resources to guide physicians through common insurance issues including coverage, out-of-network considerations, authorizations, and disability. Insurance A comprehensive document outlining screening, treatment and management as determined by an international consensus from HHT experts worldwide. These guidelines were published by the Journal of Medical Genetics in 2009 and are utilized by providers at the HHT Centers of Excellence. International Guidelines for Screening and Treatment Resources addressing the treatment of HHT-related issues that affect the liver including liver AVMs, liver failure, and liver transplantation. Liver Resources addressing HHT-related issues that affect the lungs including pulmonary AVMs, pulmonary hypertension and brain abscess caused by lung involvement. This section will include screening recommendations and treatment options. Lungs Resources to guide physicians in the management of epistaxis. Nosebleeds or Epistaxis Resources addressing HHT-related issues in women including pregnancy, menopause, and birth control. Pregnancy & Women's Issues Cure HHT’s biannual newsletter that, based on the importance of each study, centralizes and summarizes select publications about HHT for patients, clinicians, and scientists. Scientific Newsletter Resources addressing skin telangiectasias and treatment options. Skin Links to outside medical and government organizations that provide information useful for HHT providers. Useful Links to Outside Organizations
