About Our Board Members

 

Alyson Abbott Conger

"I am really excited and honored to be part of the Cure HHT Board of Directors.  I have personally watched the growth of the foundation since my childhood as my parents, Charles and Oranee Abbott have been involved since the beginning.  Our family has suffered great tragedies with the disease, but I have experienced first-hand the blessings of the progress in screening, treatment and awareness of HHT patients.  I look forward to being part of the movement forward for a cure and continued advances to benefit my children and grandchildren and the entire HHT community."

Charles J. Ingardia, MD

Charles Ingardia is a retired physician with HHT who became aware of the HHT Foundation/ Cure HHT over 25 years ago when several family members were lost to the disorder.  He was diagnosed at that time and over the years attended many patient care conferences and shared experiences with many HHT families. In 2014 he suffered a near fatal brain hemorrhage from a brain AVM.

Fortunately, he completely recovered but the experience greatly increased his desire to be a more active member of the organization. He presently is on the Board of Directors and is on the Physician Education group because of his strong desire to inform health care providers of this often undiagnosed disorder.

Marijo McCune

"I’ve been a part of the HHT community since my definitive diagnosis in 1990 and what a difference 30 years makes. That difference comes in the form of people who care so deeply and work tirelessly day in and day out to find treatments, spread awareness, and advance our steps toward a cure. I have 2 children and 2 grandchildren, all affected by HHT. It’s my commitment to them that I’ll do my part to help make their future HHT free. That’s why I am so grateful to sit on this board."

Scott Olitsky, MD, MBA

"I am part of a family that has known about HHT for at least 5 generations. I have been involved with the Board of Directors for over a decade and have seen incredible growth in the accomplishments we have made toward helping people with HHT. In addition, there is so much potential to make the lives of people living with HHT much better.  Not in the distant future but now. I am proud to be part of this organization that is working so hard for all of us."

Sara Palmer, PhD

Sara Palmer, a retired psychologist and long-time Cure HHT volunteer, joined the Board in 2015. Sara served on the development, marketing, and nominations committees, as Secretary and as Vice President. She is the author of Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia. Sara strives to help the HHT patient community of which she is a part, and to support Cure HHT’s mission to find, treat and cure HHT.

Karen Silber Weissel, PhD
Karen has been a member of the HHT Foundation International/ Cure HHT since its early beginnings. HHT is very personal to her and her family. “I have always been impressed by Cure HHT’s commitment, patient support, outreach, education, conferences, and funded research. I am honored to be a board member to support the Cure HHT mission.”