Argentina
BUENOS AIRES
Hospital Italiano de Buenos Aires
Servico de Clinica Medica
Av Presidente Peron 4190
Ciudad de Buenos Aires, Argentina
CP 1181
Contact: Dr. Marcelo Serra, Director Unidad HHT
Tel: +54 (11) 4959-0200 ext.8201/8868/5377
Whats app: +54911 6403 4698
www.hospitalitaliano.org.ar/hht/
www.hospitalitaliano.org.ar/renduoslerweber
Patient Support Group:
Facebook: Asociación Argentina de Familias con HHT
Australia
MELBOURNE
Royal Melbourne Hospital
Grattan Street
Parkville, VIC 3050
Contact: Prof.. Ingrid Winship
Tel: 03 934 27151
Tel (International): 61-3-9342-7151
SYDNEY
Royal Prince Alfred Hospital
Missenden Road
Camperdown, NSW 2050
Send Patient Referrals to: Dr. Edmund Lau
Fax: 02 9515 8196
Fax (International): 61-2-9515-8196
Belgium
ROW/HHT expert centrum
Bloedings- en Vaatziekten / Vascular Medicine and Haemostasis
University Hospitals Leuven
Herestraat 49
3000 Leuven
Contact:
Tel: [email protected] / [email protected]
Fax: ++ 32 16 34 34 91
Additional useful information for Belgian patients:
Belgian patient website: www.hhtbelgium.be
China
Department of Radiology
The Institute of Vascular Interventional Radiology
The First Affiliated Hospital of China Medical University
No. 155, Nanjing Bei Street
Shenyang, CHINA 110001
Contact: Dr. Hongshan Zhong & Dr. Ke Xu
Tel: 86-24-832-82447
Fax: 86-24-83282629
Denmark
Odense University Hospital
Dept. of Otorhinolaryngology - Head & Neck Surgery
J.B.Winsløwsvej 4
5000 Odense C
DENMARK
Contact: Dr. Anette Kjeldsen
Email: [email protected]
Tel: +45-6541 4314 / Fax: +45 6619 2615
Genetic Contact: Pernille Torring, MD, PhD
Email: [email protected]
Tel: +45 6541 1973
Secretary: Stine C. Nipgaard
Tel: +45 6541 1809
Website: https://ouh.dk/til-patienter-og-parorende/odense/centre/hht-centret
Danish Patient organization: Patientforeningen for Osler/HHT patienter i Danmark
England
LONDON
Christopher Booth Ward Programmed Admissions Unit
Hammersmith Hospital
Du Cane Road
London W12 0HS
Lead Clinician: Prof. Clair Shovlin
Contact: Ebun Onabanjo (Service Administrator)
Tel: 0203 313 4831
Telangiectasia Self Help Group: www.telangiectasia.co.uk
Contact: Diana Lawson
39 Sunny Croft Downley
High Wycombe, Bucks ENGLAND HP13 5UQ
HHT UK Support Group: https://hhtuk.org/
Facebook: https://www.facebook.com/HHTUK/
Email: [email protected]
Tel: 01438515912
LIVERPOOL
Alder Hey Children's Hospital
Eaton Road Liverpool, L12 2AP
Telangiectasia Self Help Group: www.telangiectasia.co.uk
HHT UK Support Group: https://hhtuk.org/
Facebook: https://www.facebook.com/HHTUK/
HULL / NORTHEAST
Hull Royal Infirmary
Anlaby Rd
Hull, ENGLAND HU3 2JZ
Contact: Mrs. Hilary Finnis and Dr. Graham Robinson
Tel: 44(0) 1482-674608
Patient Support Group (TSHG): www.telangiectasia.co.uk
France
LYON
Centre de Référence pour la maladie de Rendu-Osler
Service de génétique,
Hôpital Femme-Mère-Enfant - Bâtiment A1 – 4ème étage
Groupe Hospitalier Est
59, boulevard Pinel
69677 BRON FRANCE
Contact: Dr. Sophie Dupuis-Girod, Dr. Alexandre Guilhem
Tel: +33 4 27 85 65 25
Email: [email protected]
[email protected]
http://rendu-osler.fr/
https://www.chu-lyon.fr/centre-de-reference-de-la-maladie-de-rendu-osler
VASCERN A European Reference Network for genetic vascular diseases: https://vascern.eu/group/hereditary-hemorrhagic-telangiectasia-2/
PARIS
Consultation Pluridisciplinaire Maladie de Rendu-Osler
Hopital Ambrose Pare
9, Avenue Charles de Gaulle
92104 Boulogne Billancourt Cedex FRANCE
Contact: Benedicte Chesneau
Tel: 33 1 49094432
Patient Support Group: www.amro-hht-france.org
Germany
ESSEN
Essen University Hospital
Hufelandstr. 55
45147 Essen GERMANY
Contact: Essen Center for Rare Diseases (EZSE)
Tel: 49-201-723-2310
Fax: 49-201-723-6871
Patient Support Group: http://www.morbus-osler.de
COLOGNE
Kliniken der Stadt Koeln / Hospitals of the City of Cologne
Krankenhaus Holweide / Holweide Hospital
HNO – Abteilung / Department of Otorhinolaryngology
Neufelder Str. 32
D-51067 Koeln GERMANY
Contact: Ms. Monica Hentschel
Tel: 49-221-8907-12727
Fax: 49-221-8907-2730
Patient Support Group: http://www.morbus-osler.de
HOMBURG
Universitätsklinikum des Saarlandes
Diagnostische und Interventionelle Radiologie
Kirrberger Straße, Geb. 50.1
D-66421 Homburg GERMANY
Contact: Diane Wagner-Jochem
Tel: +49 (0) 6841 162 6172
Fax: +49 (0) 6841 162 4678
Contact: via Patient Support Group: http://www.morbus-osler.de
MARBURG
Universitätsklinikum Gießen und Marburg GmbH
Baldingerstraße
35043 Marburg
GERMANY
Website of the Interdisciplinary Center for Vascular Anomalies: https://www.ukgm.de/ugm_2/deu/umr_agz/index.html
Clinic Directions: https://www.ukgm.de/ugm_2/deu/umr_lpl/29137.html
Contact (German):
Email: [email protected]
Tel: +49 (0)6421 58 66478
Telemedical care is available worldwide for international patients or domestic patients traveling abroad.
International Contact (English, French, Italian, other languages on demand possible):
Email: [email protected]
Tel: +49 6421 – 58 66808
website: https://www.ukgm.de/ugm_2/deu/ugm_iof/57848.html
Patient Support Group: http://www.morbus-osler.de
Ireland
Mercy University Hospital
Grenville Place
Cork, IRELAND
Contact: Margaret Murphy & Dr. Adrian Brady
Tel: 353-21-2305040
Patient Support Group:
HHT Ireland at www.hhtireland.org
Israel
Schneider Children's Medical Center of Israel
Rabin Medical Center, Tel Aviv University
14 Kaplan St. , Petach Tikwa
HHT clinic, Respiratory Division
Tel Aviv, ISRAEL
Contact: Dr. Meir Mei-Zahav, Director
Tel: 972-3-9253654
Fax: 972-3-9253308
Email: [email protected]
Patient Support Group: Arye Copperman, President
Tel: 972-054-6923909
Italy
CREMA
HHT Clinical Team
U.O di Gastroenterologia ed Endoscopia Digestiva
Ospedale Maggiori
Largo Dossena 2
Crema, 26103 ITALY
Contact: Dr. Elisabetta Buscarini
Tel: 0039-0373-280422/280726 (secretary)
Fax: 0039-0373-280654
HHT Genetics Team
Universita di Pavia
Genetica Medica
Via Forlanini 14
Pavia, 27100 ITALY
Contact: Professor Cesare Danesino
Tel: 0039-0382-507737
Fax: 0039-0382-525030
Patient Support Group:
Fondazione Italiana HHT http://www.hht.it
BARI
University of Bari
Dipartimiento di Medicina Interna e Medicina Pubblica
Universita Policlinico
Piazza G. Cesare, Bari 70124 ITALY
Contact: Professor Carlo Sabba, M.D.
Tel/Fax: 39-080-5478708
Patient Support Group: [email protected]
Japan
Akita University School of Health Services
Department of Physical Therapy
1-1-1 Hondo, Akita, 010-8543 JAPAN
Contact: Dr. Takanobu Shioiya
Tel: 81-18-834-111 Ext. 6531
Fax: 81-18-884-6500
Patient Support Group: www.hht.jpn.com
Netherlands
St. Antonius Ziekenhuis
Koekoekslaan 1
3435 CM Nieuwegein, THE NETHERLANDS
Contact: Dr. Hans Jurgen Mager
Appointments: Mrs. Elly Vermorken
Tel: 31-30-609-2428
Norway
Rikshospitalet University Hospital
Oslo, NORWAY
Contact: Dr. Ketil Heimdal
Tel: 47-2307-5593
Fax: 47-2307-5590
Singapore
SINGAPORE
Singapore General Hospital
Outram Road
Singapore 169608
Contacts:
Kristen Alexa Lee, MD, Consultant - Department of Vascular and Interventional Radiology
Michelle Kam, Consultant, Department of Respiratory and Critical Care Medicine
Spain
BARCELONA
HHT Unit
Hospital Universitari de Bellvitge
C/Feixa Llarga s/n
L'Hospitalet de Llobregat
08907 Barcelona SPAIN
Contact: Dr. Riera-Mestre
Tel: 00 34 932607053
Patient Support Group: www.asociacionhht.org or [email protected]
Uruguay
Adult HHT Center
Hospital Maciel
Montevideo, Uruguay
Tel: +59829153000
Contact: Dr. Zelika Criscuolo
Tel: +59893861578
Pediatric HHT Center
Hospital Pereira Rossell
Montevideo, Uruguay
Tel: +59827092588
Contact: Dr. Rossana Mezzano
Tel: +59899603938