Argentina
BUENOS AIRES
Hospital Italiano de Buenos Aires
Servico de Clinica Medica
Av Presidente Peron 4190
Ciudad de Buenos Aires, Argentina
CP 1181
Contact: Dr. Marcelo Serra, Director Unidad HHT
Tel: +54 (11) 4959-0200 ext.8201/8868/5377
Whats app: +54911 6403 4698
www.hospitalitaliano.org.ar/hht/
www.hospitalitaliano.org.ar/renduoslerweber
Patient Support Group:
Facebook: Asociación Argentina de Familias con HHT
Australia
MELBOURNE
Royal Melbourne Hospital
Grattan Street
Parkville, VIC 3050
Contact: Prof.. Ingrid Winship
Tel: 03 934 27151
Tel (International): 61-3-9342-7151
SYDNEY
Royal Prince Alfred Hospital
Missenden Road
Camperdown, NSW 2050
Send Patient Referrals to: Dr. Edmund Lau
Fax: 02 9515 8196
Fax (International): 61-2-9515-8196
Belgium
ROW/HHT expert centrum
Bloedings- en Vaatziekten / Vascular Medicine and Haemostasis
University Hospitals Leuven
Herestraat 49
3000 Leuven
Contact:
Tel: [email protected] / [email protected]
Fax: ++ 32 16 34 34 91
Additional useful information for Belgian patients:
Belgian patient website: www.hhtbelgium.be
China
Department of Radiology
The Institute of Vascular Interventional Radiology
The First Affiliated Hospital of China Medical University
No. 155, Nanjing Bei Street
Shenyang, CHINA 110001
Contact: Dr. Hongshan Zhong & Dr. Ke Xu
Tel: 86-24-832-82447
Fax: 86-24-83282629
Denmark
Odense University Hospital
Dept. of Otorhinolaryngology - Head & Neck Surgery
J.B.Winsløwsvej 4
5000 Odense C
DENMARK
Contact: Dr. Anette Kjeldsen
Email: [email protected]
Tel: +45-6541 4314 / Fax: +45 6619 2615
Genetic Contact: Pernille Torring, MD, PhD
Email: [email protected]
Tel: +45 6541 1973
Secretary: Stine C. Nipgaard
Tel: +45 6541 1809
Website: https://ouh.dk/til-patienter-og-parorende/odense/centre/hht-centret
Danish Patient organization: Patientforeningen for Osler/HHT patienter i Danmark
England
LONDON
Christopher Booth Ward Programmed Admissions Unit
Hammersmith Hospital
Du Cane Road
London W12 0HS
Lead Clinician: Prof. Clair Shovlin
Contact: Ebun Onabanjo (Service Administrator)
Tel: 0203 313 4831
Telangiectasia Self Help Group: www.telangiectasia.co.uk
Contact: Diana Lawson
39 Sunny Croft Downley
High Wycombe, Bucks ENGLAND HP13 5UQ
HHT UK Support Group: https://hhtuk.org/
Facebook: https://www.facebook.com/HHTUK/
Email: [email protected]
Tel: 01438515912
LIVERPOOL
Alder Hey Children's NHS Foundation Trust- Eaton Road Liverpool, L12 2AP
Children and Young People (under 16 years of age)
Children and young people under the age of 16 with any of:
1. A confirmed genetic diagnosis of HHT or
2. Curacao criteria score of 3 or more or
3. Pulmonary and/or cerebral arteriovenous malformations and a clinical suspicion of HHT may be referred by their General Practitioner (GP), Consultant Paediatrician, or Consultant Clinical Geneticist. Referrals should be made by email to Professor Calum Semple via [email protected]
Adults (including pregnant women)
Adults with hereditary haemorrhagic telangiectasia (HHT), including pregnant women, who live in Cheshire, Merseyside, or the Isle of Man may be referred to Dr. Emily Anderson (consultant clinical geneticist) via email at [email protected]
HULL / NORTHEAST
Hull Royal Infirmary
Anlaby Rd
Hull, ENGLAND HU3 2JZ
Contact: Mrs. Hilary Finnis and Dr. Graham Robinson
Tel: 44(0) 1482-674608
Patient Support Group (TSHG): www.telangiectasia.co.uk
France
LYON
Centre de Référence pour la maladie de Rendu-Osler
Service de génétique,
Hôpital Femme-Mère-Enfant - Bâtiment A1 – 4ème étage
Groupe Hospitalier Est
59, boulevard Pinel
69677 BRON FRANCE
Contact: Dr. Sophie Dupuis-Girod, Dr. Alexandre Guilhem
Tel: +33 4 27 85 65 25
Email: [email protected]
[email protected]
http://rendu-osler.fr/
https://www.chu-lyon.fr/centre-de-reference-de-la-maladie-de-rendu-osler
VASCERN A European Reference Network for genetic vascular diseases: https://vascern.eu/group/hereditary-hemorrhagic-telangiectasia-2/
PARIS
Consultation Pluridisciplinaire Maladie de Rendu-Osler
Hopital Ambrose Pare
9, Avenue Charles de Gaulle
92104 Boulogne Billancourt Cedex FRANCE
Contact: Benedicte Chesneau
Tel: 33 1 49094432
Patient Support Group: www.amro-hht-france.org
Germany
ESSEN
Essen University Hospital
Hufelandstr. 55
45147 Essen GERMANY
Contact: Essen Center for Rare Diseases (EZSE)
Tel: 49-201-723-2310
Fax: 49-201-723-6871
Patient Support Group: http://www.morbus-osler.de
COLOGNE
Kliniken der Stadt Koeln / Hospitals of the City of Cologne
Krankenhaus Holweide / Holweide Hospital
HNO – Abteilung / Department of Otorhinolaryngology
Neufelder Str. 32
D-51067 Koeln GERMANY
Contact: Ms. Monica Hentschel
Tel: 49-221-8907-12727
Fax: 49-221-8907-2730
Patient Support Group: http://www.morbus-osler.de
HOMBURG
Universitätsklinikum des Saarlandes
Diagnostische und Interventionelle Radiologie
Kirrberger Straße, Geb. 50.1
D-66421 Homburg GERMANY
Contact: Diane Wagner-Jochem
Tel: +49 (0) 6841 162 6172
Fax: +49 (0) 6841 162 4678
Contact: via Patient Support Group: http://www.morbus-osler.de
MARBURG
Universitätsklinikum Gießen und Marburg GmbH
Baldingerstraße
35043 Marburg
GERMANY
Website of the Interdisciplinary Center for Vascular Anomalies: https://www.ukgm.de/ugm_2/deu/umr_agz/index.html
Clinic Directions: https://www.ukgm.de/ugm_2/deu/umr_lpl/29137.html
Contact (German):
Email: [email protected]
Tel: +49 (0)6421 58 66478
Telemedical care is available worldwide for international patients or domestic patients traveling abroad.
International Contact (English, French, Italian, other languages on demand possible):
Email: [email protected]
Tel: +49 6421 – 58 66808
website: https://www.ukgm.de/ugm_2/deu/ugm_iof/57848.html
Patient Support Group: http://www.morbus-osler.de
Ireland
Mercy University Hospital
Grenville Place
Cork, IRELAND
Contact: Margaret Murphy & Dr. Adrian Brady
Tel: 353-21-2305040
Patient Support Group:
HHT Ireland at www.hhtireland.org
Israel
Schneider Children's Medical Center of Israel
Rabin Medical Center, Tel Aviv University
14 Kaplan St. , Petach Tikwa
HHT clinic, Respiratory Division
Tel Aviv, ISRAEL
Contact: Dr. Meir Mei-Zahav, Director
Tel: 972-3-9253654
Fax: 972-3-9253308
Email: [email protected]
Patient Support Group: Arye Copperman, President
Tel: 972-054-6923909
Italy
CREMA
HHT Clinical Team
U.O di Gastroenterologia ed Endoscopia Digestiva
Ospedale Maggiori
Largo Dossena 2
Crema, 26103 ITALY
Contact: Dr. Elisabetta Buscarini
Tel: 0039-0373-280422/280726 (secretary)
Fax: 0039-0373-280654
HHT Genetics Team
Universita di Pavia
Genetica Medica
Via Forlanini 14
Pavia, 27100 ITALY
Contact: Professor Cesare Danesino
Tel: 0039-0382-507737
Fax: 0039-0382-525030
Patient Support Group:
Fondazione Italiana HHT http://www.hht.it
BARI
University of Bari
Dipartimiento di Medicina Interna e Medicina Pubblica
Universita Policlinico
Piazza G. Cesare, Bari 70124 ITALY
Contact: Professor Carlo Sabba, M.D.
Tel/Fax: 39-080-5478708
Patient Support Group: [email protected]
Japan
Akita University School of Health Services
Department of Physical Therapy
1-1-1 Hondo, Akita, 010-8543 JAPAN
Contact: Dr. Takanobu Shioiya
Tel: 81-18-834-111 Ext. 6531
Fax: 81-18-884-6500
Patient Support Group: www.hht.jpn.com
Netherlands
St. Antonius Ziekenhuis
Koekoekslaan 1
3435 CM Nieuwegein, THE NETHERLANDS
Contact: Dr. Hans Jurgen Mager
Appointments: Mrs. Elly Vermorken
Tel: 31-30-609-2428
Norway
Rikshospitalet University Hospital
Oslo, NORWAY
Contact: Dr. Ketil Heimdal
Tel: 47-2307-5593
Fax: 47-2307-5590
Singapore
SINGAPORE
Singapore General Hospital
Outram Road
Singapore 169608
Contacts:
Kristen Alexa Lee, MD, Consultant - Department of Vascular and Interventional Radiology
Michelle Kam, Consultant, Department of Respiratory and Critical Care Medicine
Spain
BARCELONA
HHT Unit
Hospital Universitari de Bellvitge
C/Feixa Llarga s/n
L'Hospitalet de Llobregat
08907 Barcelona SPAIN
Contact: Dr. Riera-Mestre
Tel: 00 34 932607053
Patient Support Group: www.asociacionhht.org or [email protected]
Uruguay
Adult HHT Center
Hospital Maciel
Montevideo, Uruguay
Tel: +59829153000
Contact: Dr. Zelika Criscuolo
Tel: +59893861578
Pediatric HHT Center
Hospital Pereira Rossell
Montevideo, Uruguay
Tel: +59827092588
Contact: Dr. Rossana Mezzano
Tel: +59899603938