Connect with Dr. Sara Palmer and Cure HHT staff member, Phyllis Loveland, Operations and Communications Manager, as they help you mentally navigate these challenging times of COVID-19 coupled with HHT. Join Dr. Palmer as she addresses the stressors surrounding COVID-19, social distancing, isolation and the impact of “too much information”.  Together, Dr. Palmer and Ms.…

Philippe Marambaud, PhD and Andy White, MD discuss important advances in HHT research which were presented at the 2019 HHT International Scientific Conference in Puerto Rico. Learn about advancements in drug therapies for bleeding, screening and treatments for PAVMs, and the latest basic science research! After the presentation, Drs. Marambaud and White answer the audiences…

Carrie Fiasco, Licensed Social Worker with the Cincinnati HHT Center of Excellence, explores the effects of HHT on your mental health and family relationships. In addition, learn coping skills that can help you live better with HHT, get tips on how to educate your family about HHT and how to navigate the invaluable resources available…

Dr. David Riggans, Interventional Radiologist from the Augusta Vascular Center at the Augusta University HHT Center presents his talk, “HHT Lung AVMs – A Tangled Web” from the Florida HHT Patient Conference. Dr. Riggans focuses on the importance of diagnostic imaging, as well as symptoms and therapeutic approaches to AVMs, a common complication from HHT. …

Katie Wusik Healy, LGC, MS, Genetic Counselor at the Cincinnati HHT Center of Excellence, talks about pre-implantation genetic testing (PGT), including what you might consider before pursuing PGT. In addition, options for determining if a child has HHT through genetic testing before and during pregnancy, as well as after birth were discussed. Following the presentation,…