Dr. Abbey Hughes, board-certified rehabilitation psychologist and assistant professor in the Department of Physical Medicine and Rehabilitation at the Johns Hopkins University School of Medicine, discusses how to manage stress and emotional hurdles in HHT. Living with HHT often means coping with a host of unpredictable symptoms, including nosebleeds, anemia, fatigue, shortness of breath, headaches,…

On May 20, 2020, Nicole Schaefer, Director of Medical and Scientific Programs and Phyllis Loveland, Operations and Communications Manager took a look into all that the new Cure HHT Resource Library has to offer the HHT Community, both patients and health care providers. The Resource Library is bursting with hundreds of published scientific literature, fact…

Connect with Dr. Sara Palmer and Cure HHT staff member, Phyllis Loveland, Operations and Communications Manager, as they help you mentally navigate these challenging times of COVID-19 coupled with HHT. Join Dr. Palmer as she addresses the stressors surrounding COVID-19, social distancing, isolation and the impact of “too much information”.  Together, Dr. Palmer and Ms.…

Philippe Marambaud, PhD and Andy White, MD discuss important advances in HHT research which were presented at the 2019 HHT International Scientific Conference in Puerto Rico. Learn about advancements in drug therapies for bleeding, screening and treatments for PAVMs, and the latest basic science research! After the presentation, Drs. Marambaud and White answer the audiences…

Carrie Fiasco, Licensed Social Worker with the Cincinnati HHT Center of Excellence, explores the effects of HHT on your mental health and family relationships. In addition, learn coping skills that can help you live better with HHT, get tips on how to educate your family about HHT and how to navigate the invaluable resources available…