Looking for current, reliable and easy to understand information about rare or genetic diseases? Contact GARD Information Specialist. Affiliated with the National Institutes of Health (NIH), the Genetic and Rare Diseases Information Center (GARD) is a program of the National Center for Advancing Translational Sciences (NCATS) and is funded by two parts of the National…

Cure HHT partners with NORD to empower the rare disease community. NORD maintains a Rare Disease Database, Rare Action Network, Patient Assistance Program, and Physician Guides. NORD organizes Rare Disease Day, the international advocacy day to bring widespread recognition of rare diseases as a global health challenge.

Have questions about anemia? The American Society of Hematology has the answers. The American Society of Hematology has developed resources for the patient section of their website to educate the public about the importance of healthy blood and to raise the awareness of common blood diseases, such as anemia, bleeding and clotting disorders, and blood…

Clot Connect is an education project of the UNC Blood Clot Outreach Program in the UNC Hemophilia and Thrombosis Center. Clot Connect’s mission is to increase knowledge of blood clots, clotting disorders and anticoagulation by providing education and support resources for patients and health care professionals.

Tissue or whole body donation allows advancements in research that aren’t possible using animal or artificial models. The mission of AGR’s caring & compassionate non-profit program is to provide expertly prepared anatomical gifts to scientists, clinicians, & educators whose endeavors are deserving of the donation. AGR can only accept donors who pass away within the…