Our understanding of HHT is constantly evolving. If you haven’t been to a conference in a few years, or it’s been a while since you were last seen at an HHT Center of Excellence – this session is a must. In this session, you’ll learn: How were the 3 HHT genes identified? What functions do these genes encode? How do the mutations cause HHT? Finally, what does all this mean for the search for effective treatment and ultimately, a cure? Live Q&A discussion Learn more.    

Our understanding of HHT is constantly evolving. If you haven’t been to a conference in a few years, or it’s been a while since you were last seen at an HHT Center of Excellence – this session is a must. In this Cure HHT webinar recording, we walk through the five biggest changes in HHT…

If you live with hereditary hemorrhagic telangiectasia (HHT), you already know nosebleeds (epistaxis) aren’t “just annoying”—they can disrupt daily life, drive anxiety, and in some cases lead to serious complications. In this Cure HHT webinar recording, we walk through practical, up-to-date strategies to help you manage chronic and recurring HHT-related nosebleeds and understand the growing…

An informative webinar about hereditary hemorrhagic telangiectasia (HHT). The webinar is being run by Cure HHT and introduces an upcoming clinical trial evaluating whether an investigational medication has the potential to treat HHT. During this session, HHT expert Dr. Hanny Al-Samkari clearly explains the goals of this clinical trial and who can take part. Learn…

Iron deficiency anemia is common in people with HHT with an estimated prevalence of 50%. Further, a number of people with HHT develop symptomatic iron deficiency without anemia. Iron deficiency is an under recognized and sub-optimally managed complication in people with HHT.