Webinars

The Cure HHT webinar series informs patients and physicians of the latest information in HHT treatment, medicine and research, but also builds and strengthens the HHT community. The live webinars feature physicians and scientists specializing in HHT, with each webinar including a Q&A period.


Upcoming LIVE Webinars

HHT: Caring for the Younger Generation
Tuesday, September 26, 2017 from 7:00pm - 8:00pm (EDT)
Presented by: Lynne Sekarski, MSN, RN, CPN

Join Lynne Sekarski for an in-depth conversation about HHT and children. Children are typically asymptomatic but this does not mean they didn’t inherit the disease. Gain insight from a pediatric perspective about screening and treatment protocols, management of lung and brain AVMs and other special considerations regarding children such as anesthesia, radiation and exercise.


#OnMyOwn
Tuesday, October 24, 2017 from 7:00pm - 8:00pm (EDT)
Presented by: James Gossage, MD and Sara Palmer, PhD

Join Drs. Gossage and Palmer for an in-depth discussion on how to advocate for your health. This webinar is for young adults living on their own or newly diagnosed patients needing to navigate the HHT healthcare system. Gain an understanding of general HHT screenings and follow-up schedules, know your insurance benefits, learn how to find a doctor and prepare for long-term relationships which may include planning a family.


HHT Scientific Conference Summaries
November 2017 (Date TBD)

The 12th HHT International Scientific Conference was held in Dubrovnik, Croatia in June 2017. Over 200 voices were heard from six continents (23 countries) through the presentation of oral and poster presentations. The Executive Summary of basic science and clinical science talks and workshops will be published in the fall issue of Angiogenesis. Hear first hand from the Executive Summary authors a synopsis of the HHT science presented from around the world at this meeting.


Tangled Web of HHT
Monday, December 4, 2017 from 4:00pm - 5:00pm (EST)
Presented by: Scott Trerotola, MD

Join Dr. Trerotola for an in-depth discussion on Pulmonary AVMs and how they affect your body. Pulmonary AVMs represent one of the most important manifestations of HHT. This webinar will discuss the screening guidelines, symptoms and therapeutic approaches to AVMs in the lungs.

 


Past Webinars