Abstracts – 13th HHT International Scientific Conference (2019)

Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.

Executive Summary – 13th HHT International Scientific Conference (2019)

Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.

HHT Lung AVMs – A Tangled Web (recorded)

Dr. David Riggans, Interventional Radiologist from the Augusta Vascular Center at the Augusta University HHT Center presents his talk, “HHT Lung AVMs – A Tangle…

IVF and Preimplantation Genetic Testing for HHT (recorded)

Katie Wusik Healy, LGC, MS, Genetic Counselor at the Cincinnati HHT Center of Excellence, talks about pre-implantation genetic testing (PGT), including what you…

HHT Frontlines Scientific Newsletter (2019)

June 2019. Cure HHT’s biannual newsletter that centralizes and summarizes select and important publications about HHT for patients, clinicians, and scientists.

Identification of Retinal Vascular Lesions Using Ultra-Widefield Angiography in HHT Patients

Study to determine the presence and to characterize the location of retinal vascular lesions in patients with HHT. Of the 18 patients recruited, fine telangiect…

Identification of Retinal Vascular Lesions Using Ultra-Widefield Angiography in HHT Patients

Ophthalmology Retina. Authors: Sampat Sindhar BS, Bliss E.O’Bryhim MD, PhD, Jordan Licata DO, Jay F.Piccirillo MD, Rajendra S.Apte MD, PhD. This article can be…

Anemia and Iron Deficiency in HHT (recorded)

Anemia is commonly experienced by those affected with HHT and it frequently results from bleeding of the nose and/or gastrointestinal tract. Dr. Adrienne Hammil…

Healthcare Provider Brochure – Role of a Doctor in HHT Care

Screening & Treatment of Brain AVMs in HHT (recorded)

Have you been screened for a brain AVM? If you have a brain AVM, do you know the guidelines for screening and treatment? Arteriovenous Malformations (AVMs) repr…

Eating for Health: Dietary Choices that Impact Bleeding

Ever wonder if certain foods trigger nosebleeds? Lisa Mannik, Registered Dietitian in the division of respirology at St. Michael’s Hospital HHT Centre in Toront…

My HHT Tracker (recorded)

Peter Lauwers, lead member of the Arbormoon Software, Inc. development team, walks through all of the features of this FREE new iOS App for HHT patients. My HHT…

My HHT Tracker – URL Links

My HHT Tracker app allows you to educate yourself about HHT and track your health at no cost to the user. The app is available on Apple iOS only. Use the app to…

My HHT Tracker Quick Guide

My HHT Tracker app allows you to educate yourself about HHT and track your health at no cost to the user. The app is available on Apple iOS only. Use the app to…

Systemic bevacizumab for the treatment of chronic bleeding in HHT

Journal of Internal Medicine. Authors: Al-Samkari, H., Kritharis, A., Rodriguez-Lopez, J.M., and Kuter, D.J. This article can be purchased directly from the pub…

HHT and Insurance: Overview, resources, and out-of-network concerns

Pazopanib May Reduce Bleeding in Hereditary Hemorrhagic Telangiectasia

Angiogenesis. Authors: Marie E. Faughnan, James R. Gossage, Murali M. Chakinala, S. Paul Oh, Raj Kasthuri, Christopher C. W. Hughes, Justin P. McWilliams, Josep…

Pregnancy and HHT

Endoglin Interacts with VEGFR2 to Promote Angiogenesis

Angiogenesis is the physiologic process by which new blood vessels arise from pre-existing vessels. Endoglin, a TGF-β coreceptor predominantly expressed in endo…

Endoglin Interacts with VEGFR2 to Promote Angiogenesis

The FASEB Journal. Authors: Hongyu Tian, Jennifer J. Huang, Christelle Golzio, Xia Gao, Melissa Hector-Greene, Nicholas Katsanis, and Gerard C. Blobe. This arti…

HHT: Diagnosis and Management from the Hematologist’s Perspective

This review discusses the biology of HHT, management issues that face the practising hematologist, and considerations of future directions in HHT treatment. The…

HHT: Diagnosis and Management from the Hematologist’s Perspective

Haematologica. Authors: Athena Kritharis, Hanny Al-Samkari, and David J Kuter. This article is available for public use and does not require purchase. Click to…

Genetics: Unraveling Your DNA (recorded)

Jaime Jessen, BSc, MSc, CGC, Certified Genetic Counselor and Medical Science Liaison at Impact Genetics and LabCorp, provides an informative presentation on the…

HHT Genetic Counseling Services

Your doctor may refer you to a genetic counselor to discuss your risk for HHT and your genetic testing options. The role of a genetic counselor is to help you b…

Genetic Testing and HHT

HHT Overview and Screening Guidelines (recorded)

Dr. Mollie Meek, Director at the University of Arkansas Medical Sciences HHT Center of Excellence, provides an introduction to the basic clinical features of HH…

Applicability of the Curacao Criteria for the Diagnosis of HHT in the Pediatric Population

The Journal of Pediatrics. Authors: Kristy S. Pahl, Arkopal Choudhury, Katie Wusik, Adrienne Hammill, Andrew White, Katharine Henderson, Jeffrey Pollak, and Raj…

Vitamin D levels are Associated with Epistaxis Severity and Bleeding Duration in Hereditary Hemorrhagic Telangiectasia

A retrospective chart review of 198 patients was performed to explore the relationship between vitamin D levels and the ESS in order to explore the association…

Vitamin D levels are Associated with Epistaxis Severity and Bleeding Duration in Hereditary Hemorrhagic Telangiectasia

Biomarkers in Medicine. Authors: Lauren Marissa Weber, Jamie McDonald and Kevin Whitehead This article is available for public use and does not require purchase…

Making the Connection Between Legislative Advocacy and Federal Funding for HHT (recorded)

Cure HHT Legislative Advisor Mark Vieth takes us for a behind-the-scene look at how Cure HHT can impact federal research funding and awareness of this disease….