Pathophysiology of HHT and Advances in HHT Research (recorded)
Dr. Christopher Hughes, Chairman of Cure HHT’s Global Research and Medical Advisory Board, discusses the basic science behind HHT as well as six new research pr…
MoreHemorrhage Rates from Brain Arteriovenous Malformation in Patients with HHT
Stroke. Authors: Helen Kim, Jeffrey Nelson, Timo Krings, Karel G. terBrugge, Charles E. McCulloch, Michael T. Lawton, William L. Young, Marie E. Faughnan, and t…
MoreFeraheme: Prescribing Information
Highlights for prescribing information for Feraheme from AMAG Pharmaceuticals, including but not limited: Indications for usage, dosage and administration, cont…
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Feraheme: Prescribing Information
AMAG Pharmaceuticals, Inc. This article is available for public use and does not require purchase. Click to view the full article.
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Cardiac and Liver Manifestations (recorded)
Dr. Kevin Whitehead, Co-Director at the University of Utah HHT Center of Excellence, covers various ways that the heart can be affected in HHT, including heart…
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Brain Vascular Malformations in HHT: Knowledge is the Key (recorded)
Dr. Marie Faughnan, Director of the HHT Center of Excellence at the University of Toronto / St. Michael’s Hospital, Scientific Research Director for Cure HHT, r…
MoreHereditary Hemorrhagic Telangiectasia: Genetics and Molecular Diagnostics in a New Era
Frontiers in Genetics. Authors: Jamie McDonald, Whitney Wooderchak-Donahue, Chad VanSant Webb, Kevin Whitehead, David A. Stevenson and Pinar Bayrak-Toydemir. Th…
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HHT in Children: Talking to Your School Nurse (recorded)
Leslie Perry, BSN, R.N. discusses helping children manage their HHT in a social and academic environment from the perspective of a school nurse. She offers advi…
Direct LinkOptimal Management of HHT
HHT remains frequently underdiagnosed and many families do not receive the appropriate screening and treatments. This article provides an overview of the clinic…
MoreOptimal Management of HHT
Journal of Blood Medicine. Authors: Neetika Garg, Monica Khunger, Arjun Gupta, and Nilay Kumar. This article is available for public use and does not require pu…
MoreJAMA Clinical Challenge – Red Papules on the Tongue of a Patient with Hemiparesis
JAMA. Authors: Hsien-Yi Chiu, MD and Sung-Jan Lin, MD, PhD. This article can be purchased directly from the publisher. Click to view the article description and…
MoreOutcomes of Pregnancy in Women with HHT
Obstetrics & Gynecology. Authors: de Gussem, Els M. MD; Lausman, Andrea Y. MD, FRCPC; Beder, Aarin J. MD, CFPC; Edwards, Christine P. BSc; Blanker, Marco H. MD,…
MoreVEGF Neutralization can Prevent and Normalize Arteriovenous Malformations in an Animal Model for HHT2
Angiogenesis. Authors: Chul Han, Se-Woon Choe, Yong Hwan Kim, Abhinav P. Acharya, Benjamin G. Keselowsky, Brian S. Sorg, Young-Jae Lee, and S. Paul Oh. This art…
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Impact of Pulmonary Arterivenous Malformations on Respiratory-Related Quality of Life in Patients with HHT
PLOS One. Authors: Sandra Blivet, Daniel Cobarzan, Alain Beauchet, Mostafa El Hajjam, Pascal Lacombe, and Thierry Chinet. This article is available for public u…
MoreIschaemic Strokes in Patients with Pulmonary Arteriovenous Malformations and HHT: Associations with Iron Deficiency and Platelets
PLoS One. Authors: This article is available for public use and does not require purchase. Click to view the full article.
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Iron Deficiency and Anemia in HHT (recorded)
Dr. Raj Kasthuri, Director of the University of North Carolina at Chapel Hill HHT Center of Excellence, discusses the manifestations of iron deficiency and anem…
MoreTopical Timolol for the Treatment of Epistaxis in HHT
American Journal of Otolaryngology. Author: Scott E. Olitsky, MD. This article is available for public use and does not require purchase. Click to view the full…
MoreComplications from Office Sclerotherapy for Epistaxis Due to HHT (Osler-Weber-Rendu)
International Forum of Allergy & Rhinology. Authors: John E. Hanks, David Hunter, George S. Goding Jr, and Holly C Boyer. This article can be purchased directly…
MoreClinical Implications of Pulmonary Shunting on Contrast Echocardiography
Pulmonary right-to-left shunting can be encountered using transthoracic contrast echocardiography (TTCE) with agitated saline. Diseases associated with pulmonar…
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Clinical Implications of Pulmonary Shunting on Contrast Echocardiography
Author: Sebastiaan Velthuis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
MoreImproved Survival Outcomes in Cancer Patients with HHT
Cancer Epidemiol Biomarkers & Prevention (American Association for Cancer Research & American Society of Preventive Oncology). Authors: Christine W. Duarte, Kim…
MoreFDA Warning: Faraheme and MRI
U.S. Food and Drug Administration (FDA). This article is available for public use and does not require purchase. Click to view the full article.
MoreHemorrhage-Adjusted Iron Requirements, Hematinics and Hepcidin Define HHT as a Model of Hemorrhagic Iron Deficiency
PLOS One. Authors: Helen Finnamore, James Le Couteur, Mary Hickson, Mark Busbridge, Kevin Whelan, and Claire L. Shovlin. This article is available for public us…
MoreCerebral Abscesses among Danish Patients with HHT
Acta Neurol Scandinavica. Authors: A. D. Kjeldsen, P. M. Tørring, H. Nissen, and P. E. Andersen. This article can be purchased directly from the publisher. Clic…
MoreBevacizumab: Finding its Niche in the Treatment of Heart Failure Secondary to Liver Vascular Malformations in HHT
Hepatology. Authors: Lawrence H. Young, Katharine J. Henderson, Robert I. White, and Guadalupe Garcia-Tsao. This article is available for public use and does no…
MoreEfficacy of a Topical Sesame/Rose Geranium Oil Compound in Patients with HHT Associated Epistaxis (Article)
The Laryngoscope. Authors: Douglas D. Reh, Kevin Hur, and Christian A. Merlo. This article can be purchased directly from the publisher. Click to view the artic…
MoreEfficacy of a Topical Sesame/Rose Geranium Oil Compound in Patients with HHT Associated Epistaxis
The Laryngoscope. Authors: Douglas D. Reh, MD, Kevin Hur, BA, and Christian A. Merlo, MD, MPH.
MoreBrain Vascular Malformation Consortium: Overview, Progress, and Future Directions
Semantic Scholar. Authors: Amy Akers, Karen Le Ball, Marianne S. Clancy, Anne M Comi, Marie E. Faughnan, Thomas P. Jacobs, Helen Kim, Jeffrey P. Krischer, Dougl…
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Nosebleed Treatment Options
90% of HHT patients experience epistaxis (nose bleeding). However, the severity, frequency and duration vary from patient-to-patient and family member-to-family…
MoreThe Young’s Procedure for Severe Epistaxis from HHT
American Journal of Rhinology & Allergy. Authors: Sara L. Richer, M.D., Urban W. Geisthoff, M.D. and Urban W. Geisthoff. Department of Otorhinolaryngology, Hosp…
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