Mi CHECKLIST Sobre HHT Cuidados: Embarazo y Parto
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
MoreMi CHECKLIST Sobre HHT Cuidados: Adolescencia
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
MoreMi CHECKLIST Sobre HHT Cuidados: Malformaciones Arteriovenosas Pulmonares (MAVP)
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
MoreMi CHECKLIST Sobre HHT Cuidados: Malformaciones Vasculares Hepáticas (MVH)
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
MoreMi CHECKLIST Sobre HHT Cuidados: Sangrado Gastrointestinal
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
MoreMi Checklist Sobre HHT Cuidados: Malformaciones Vasculares Cerebrales (MVC)
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
MoreAngel Flight NE
Angel Flight NE is a non-profit organization providing FREE medical air transportation for individuals with limited financial resources, including those sufferi…
MoreNosebleed Management – Nurse Cards
This card contains helpful tips for nosebleed management in a format that is ideal for providers who may not be familiar with the care required for HHT-related…
MoreA Comprehensive Guide to Managing Your HHT
We’ve taken the International HHT Guidelines and distilled them into easily readable factsheets and checklists that can be filled out and given to your physicia…
MoreNo-Cost Genetic Testing for HHT and Other Rare Diseases: Rare Genomes Project
The Rare Genomes Project is a patient-driven research project through the Broad Institute that performs full genome sequencing on families with suspected singe…
MoreHHT Medical Emergency Wallet Card
In the event of an emergency, this printable compact medical card is wallet-sized and can speak for an HHT patient when they can’t. The card features a descript…
MoreMi Checklist Sobre Cuidados de HHT: Nasales
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
MoreMi CHECKLIST Sobre Cuidados de HHT: Anemia
Las listas de verificación “Mi HHT” son una serie de listas de verificación por área temática para que las personas con HHT se autogestionen y las lleven a su m…
MoreCOVID-19 Official Updates Page
Cure HHT Official Health Updates page related to COVID-19, including official updates and statements, as well as links and other resources.
MoreHHT and COVID-19: Basics and What We Know in HHT
Dr. Justin McWilliams’ presentation slides related to HHT and COVID-19 from the 2021 Virtual Meet-Up, HHT and COVID: 1 Year Later. Dr. McWilliams is an Interven…
MoreHHT and COVID-19: Vaccines
Dr. Marie Faughnan’s presentation slides related to HHT and COVID-19 vaccinations, from the 2021 Virtual Meet-Up, HHT and COVID: 1 Year Later. Dr. Faughnan is a…
MoreHHT and COVID-19: Clotting and Anemia
Dr. Raj Kasthuri’s presentation slides related to HHT, COVID-19 and clotting and anemia, for the 2021 Virtual Meet-Up, HHT and COVID: 1 Year Later. Dr. Kasthuri…
MoreMy Teen Years HHT Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreMy HHT Nosebleed Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreMy HHT Liver VM Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreMy HHT GI Bleeding Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreMy HHT Diagnosis Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreMy HHT Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreMy HHT Brain VM Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreMy HHT Pulmonary AVM Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreMy Child’s HHT Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreMy HHT Pregnancy & Delivery Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreMy HHT Anemia and Iron Deficiency Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreCure HHT Social Media Channels
Get the lastest information on everything HHT — clinical trials, educational events, regional awareness activities, revised clinical guidelines, COVID-19 updat…
MoreCOVID-19 Fact Check Links
How do you know if what you are being told about COVID-19 is true? Before sharing information with friends and family, make sure you use these reliable fact che…
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