HHT in children
Resources for understanding the different screening and treatment needs in children.
Related Resources
Family Ties: Genetic Testing
Fact Sheet – 2016As a hereditary disease, HHT has the potential to devastate families if not identified and treated. Some of the most easily identifiable symptoms of HHT don’t manifest until adolescence or adulthood. Be proactive and identify affected family members…
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My Child Has HHT: Screening Guidelines
Fact Sheet – 2016Screening your child for HHT is an essential part of their preventive health care. HHT runs in families and each child born has a 50% chance of inheriting the HHT gene.
MoreDe Novo Arteriovenous Malformation in a Patient with HHT
Scientific Literature – 2015Journal of Neurosurgery. Pediatrics. Authors: Yusuke Shimoda, Toshiya Osanai, Naoki Nakayama, Satoshi Ushikoshi, Masaaki Hokari, Hideo Shichinohe, Takeo Abumiya, Ken Kazumata, and Kiyohiro Houkin. This article is available for public use and does not…
MoreExecutive Summary – 11th HHT International Scientific Conference (2015)
Scientific Literature – 2015Angiogenesis. Authors: Helen Arthur, Urban Geisthoff, James R. Gossage, Christopher C. W. Hughes, Pascal Lacombe, Mary E. Meek, Paul Oh, Beth L Roman, Scott O. Trerotola, Sebastiaan Velthuis, and Whitney Wooderchak-Donahue. This article can be purcha…
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What Does This All Mean to Me and My Family? (recorded)
Webinar – 2015Dr. Justin McWilliams, Co-Director of the HHT Center of Excellence at the University of California Los Angeles, highlights the recommended screening and treatment guidelines that should follow an HHT diagnosis. Dr. McWilliams discusses the need for p…
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HHT in Children: Talking to Your School Nurse (recorded)
Webinar – 2014Leslie Perry, BSN, R.N. discusses helping children manage their HHT in a social and academic environment from the perspective of a school nurse. She offers advice for providing your school nurse with essential information, talking about HHT with othe…
Direct LinkHereditary Hemorrhagic Telangiectasia: Children Need Screening Too
Scientific Literature – 2011Pediatric Nursing. Authors: Lynne A. Sekarski and Lori A. Spangenberg. This article can be purchased directly from the publisher. Click to view the article description and purchase options.
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Advocating for Your Child: 504 Plan
Article – 2010What can a parent do to help their child manage HHT and succeed in school? The Americans with Disabilities Act (ADA) is federal legislation designed to prevent discrimination based on a medical condition. Section 504 of ADA is a civil rights document…
MoreRelated News
Facebook Live: AMA with Dr. Miles Conrad, UCSF
Upcoming Event: Facebook Live: AMA with Dr. Miles Conrad, UCSF Tuesday, June 2Â |Â 7:00-8:00pm ET This is your opportunity to ask questions about HHT symptoms, diagnosis, treatment options, and…
Brain AVMS – Recent Advances in Imaging and Management
April 14, 2026
Ask the Nurse: A Conversation on Pediatric HHT
March 12, 2026
