HHT: A WHOLE SYSTEM DISEASE
HHT is often introduced to the world through a single symptom, but it’s far more than that. HHT is a whole-system disease that can affect vital organs, entire families, and generations.
Behind every diagnosis lies a web of missed clues, generational stories, and the strength it takes to navigate a disease that’s as systemic as it is personal.
What is HHT
HHT affects more than 1.4 million people worldwide and is the 2nd most common genetic bleeding disorder in the U.S. But it is still often misdiagnosed and misunderstood.
What We’ve Accomplished
Since our inception in 1991, we’ve worked tirelessly to raise awareness, improve treatments, and increase patient access to life-saving care.
Impact by the numbers.
We drive science forward through government advocacy, seed grants, and other means. Turning your donations into millions of dollars dedicated to funding new treatments, technology, and drugs.
28 seed grants
Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.
HHT News You Can Use
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